Sunday, 29 April 2007

BLP25 Liposomal vaccine trials for non-small cell lung cancer

Below is a link for the trial of BLP25 Lipossomal vaccine (Stimuvax) for non-small cell lung cancer

This trial should be starting in the UK sometime this year. If I hear anything I will post it on the board.

I had my CT scan on 27th April and will get the results on 4th May. It was a chest and abdominal scan this time. I am hoping that the result will be the same as the last one I had, that Theo (my cancer) has not grown. I am feeling very nauseous today, not sure if it is the anxiety, CT fluid or the menopause.
What a mess I am, I have Alopecia as well (have around 18 patches of hair missing on my head) one eye brow and my arm hair as gone! (The hair under my arms and on my legs has not been affected....typical!) I am falling to bits.

Saturday, 28 April 2007

Steve McQueen, Paul Gleason and Mesothelioma

I found out about 2 very high profile Mesothelioma sufferers today. Steve McQueen and Paul Gleason. I knew Steve McQueen had lost his life to cancer at an early age but never really knew what cancer he suffered with. I have added links to sites that relate to these fine actors.

Steve McQueen

Steve died in November 1980 and will always be remembered for his film many films but the most memorable would have to be "The great escape" and if he had survived Mesothelioma it surley would have been.

Paul Gleason

Paul Gleason died in May 2006 and will be remembered for his films especially "Breakfast Club" and "Trading Places" with Eddie Murphy and Dan Ackroyd.

**** 28th April Workers memorial day ****

Remembering all who have lost their lives to asbestos related illnesses, especially my dear dad, Phillip Northmore.

Friday, 27 April 2007

Workers memorial day

Workers memorial day is 28th April and is dedicated to all workers who have perished due to industrial illness.
The links below will direct you to a site that features a family affected by this tragedy.

Roger Lowe's family have worked tirelessly to create a campaign in his name which will be launched on 28th April to coincide with workers memorial day.
My support is with the family in achieving their goal. Well done and keep up the good work.

Saturday, 21 April 2007

Links to other sites

I have a very good friend who sufferers with Alopecia. She has had it since she was a child and is a great support to people with the same condition and also for people going through chemotherapy treatments. I am adding a link to her website as this site is being updated and any links may not go up right away.

Paul Kraus is a Mesothelioma sufferer who is celebrating his 10th year of surving Mesothelioma.
He has the peritoneal Mesothelioma (mesothelioma in the abdomin) which is rarer than the Pleural Mesothelioma.

Mr Kraus has also produced a book on how he is surviving this deadly cancer.

Another site that may have useful advise is cancer survivor. Although it is about breast cancer, a lot of the alternative therapy advice is for cancer in general.

This site has a lot of information about vitimins and minerals needed for a healthy body. It has a very good piece on antioxidants. Antioxidants help to keep free radicals under control.

(Definition of free radicals : An atom or group of atoms that has at least one unpaired electron and is therefore unstable and highly reactive. In animal tissues, free radicals can damage cells and are believed to accelerate the progression of cancer, cardiovascular disease, and age-related diseases)

All of these sites give advice and do not try and take the place of a professional.It is always a good idea to consult your oncologist about any supplements you wish to try because if you are recieving conventional treatments, some may may not be compatable with medicines prescribed.

I hope this is helpful.

Support Group in Plymouth?

Well.....not quite a good weekend. I think I am going through the menopause as well!!!


Anyway back to the main topic.

With the response being so positive, I was thinking of arranging a meeting once a month for sufferers and families of Mesothelioma and any other asbestos related condition. I know I would like to meet people with my disease and maybe get some professional people involved at the meetings as there will be questions asked and hopefully they will be answered.
I would be happy to take any comments or thoughts about this and will start a new thread and see what the response is.

The thread is called SUPPORT GROUP and can be found in the message board and under general discussion. There is also a poll under the name of SUPPORT GROUP for anyone who wants to voice their opinion and does not want to leave a message.

Thursday, 19 April 2007

Making friends with Theo

I decided a few months ago that I would try and make friends with my cancer. I have given him a name, Theo, and he is now a part of my life. I hope Theo can understand that I do not want him to grow anymore and he is welcome to stay as long as he lives by my rules and he needs to understand that I have a family to take care of and a future ahead of me. Hopefully he won't feel put out and will relax and enjoy these special things with me. Only time will tell.

Perfect Gent

A lovely man from Newton Abbot contacted me today as he concerned about Mesothelioma as he had worked with asbestos, he used to sweep up the dust!
He asked me about symptoms, I advised him that I was not a medical professional and I couldn't give him anything other than to go and see his GP. If he is a good GP (like mine who is amazing) he should tell him he has worked with asbestos and request a chest X-ray. This would hopefully confirm he is safe and put his mind at rest. I hope it is clear and have asked him to keep in touch. For anyone else feeling concerned, do it when you are ready. If you want support, it is out there. This is what this site is all about.
Not all tests will come back like mine did. I was unfortunate, remember, you are not alone.

Wednesday, 18 April 2007

Living with it not dying with it

I have had some really amazing emails and messages from people who are in the same or similar situation to my family and I and messages from friends who are involved through knowing me.. I am really touched by the comments recieved and the very helpful info.
One of the people who contacted me was a lady in Exeter who said she had it and she was "living with it , not dying with it". This is very true but her saying it has made me realise that.
I have tried to make friends with Mesothelioma and not treat it as an enemy.
I have it and there is no changing that. With all the support that has come into my life, from friends, family and people I don't even know, gives me the push I need to say I will try and beat this thing. Thank you to everyone who has responded. It is greatly appreciated.

Monday, 16 April 2007

Website Launched

My little website has had some coverage today and the messages have been so positive.
I have so many great friends who are supporting me. Many of them have taught me what friendship truely is. I never expected such wonderful messages to be posted on here.

A big thank you to my wonderful daughter without whom this wesite would not be possible. I must be driving her crazy, asking for help every 5 seconds as I am not as clued up as she is.
She has done a fantastic job.

ITV have asked me to do a piece to camera about it which should go out tomorrow.
I appreciate the time they have taken to give me airtime and to promote Mesothelioma again. The BBC have added a link to my website through their local news page.

I was quite suprised as it is only my personal account and I didn't think it would be that news worthy.

With the elections looming....will any politicians be interseted in my cause?
Watch this space.

Sunday, 15 April 2007

Flax oil diet

It has been reccommended that I try the Flax oil diet. This is a diet created by Dr Johanna Budwig (6 times Nobel prize winner).
I have nothing to lose, I am also going to try the tia chi excercises sent to me, shang therapy.
It will be an interesting adventure and hopefully I will se some changes.
Like all alternatives, it is not proven but, I have nothing else open to me. I can't sit back and do nothing.
I will add any comments about the diets in my diary.

Thursday, 12 April 2007

Shang therapy

I received a DVD today and not sure what to make of it. It is chinese therapy and the shang therapy is supposed to help with lung cancer. I may give it a try. What have I got to lose?

I am a little bit down today as I have to record all my information and send off concerning my state pension. The reason being is that I may not be around to benefit from it. I am still trying to understand why this is happening to me. I am not a bad person. I love my children dearly. Why me and why now? I am just getting my life together and starting to create a bit of time for myself and now it will be taken away.

Tuesday, 10 April 2007

Fighting the cause

Well....what a wonderful 2 days I have had. ITV's this morning asked if I would go on their show and it has been amazing.
My friend and I stayed in a hotel in Kensington.
We were chaffeur driven to our destinations and then to the station to return home.

Fern, Phil and the behind the scenes people seemed to be genuinly interested in my situation and my campaign to highlight the dangers of Asbestos, the lack of treatment for Mesothelioma and living with this time bomb.

Couldn't wait to get back to my children as I miss them terribly when I go away.

I have got my third CT scan on 27th April and will get the results on 4th May. I really do hope that I get the same results as last time, that it has not grown.
Nearly into the 6th of the 9 months I was given originally in December. I am feeling really well and positive at the moment and I hope it stays like that for a long time.