Wednesday, 31 December 2008

Happy new year

Happy new year to my family and friends and especially all the new friends I have met in 2009.
It has been a roller coaster year for me. The year started with an appointment with my oncologist who told me to be grateful for the life I have had and to go home and enjoy what I had left to having a 53% reduction in my tumour.

I also want to remember the wonderful people who didn't get the opportunity I have had and lost their lives to mesothelioma.

A very special mention to Pat who lost Tony early this year as without them, I wouldn't have found the information about chemoembolization and mistletoe. Not a day goes by when I don't think of them and thank them for what they have done. There will always be a special place here for them.

Other's who passed away in 2008 and will always be special to this site are :



Michel Hall : March 6th 2008

Tony Webb : March 2008

Mandy Kaminskas : May 2008

Erna Hienmann : August 1st 2008 *

John Sachs : September 18th 2008

Tony Todd : November 16th 2008

Philip Branch : December 18th 2008



*Erna had her chemoembolization treatment the same time as my first treatment and we met on the ward afterwards and swapped emails and chatted. She was a wonderful lady who I regret not meeting again in different circumstances. My best memory is drinking our water on the ward and pretending we were on a beach drinking cocktails, sex on the beach, it was lovely.

My thoughts go out to the families of the above and wish them a happy as can be expected new year.

Debbie x

Can't sleep, bed too full....and so is my nose!!

I have been up for about 40 minutes, reading my emails and browsing the net.
My nose is bunged up and I can't move in my bed. Kieran came in for a cuddle, which is lovely. He insists on saying "hello mum" over and over again until I wake up. I know he means well and wants a cuddle but I can't back to sleep. The kittens are on the bed as well. Stork is suckling the pillow and his sloppy, drooly sounds are emulated by the silence. Cookie is at the foot of the bed.
I am squashed up against the wall.....isn't life grand.
I came down to make myself a hot drink and then will battle my way back into my bed.

I had an email from a lady in Australia who has Mesothelioma and has had a successful pregnancy. Anita Steiner has her own blog which she updates.

http://blog.anitalive.com/

Tomorrow , or today I should say is new years eve. The children and I shall be donning our outfits and having some fun.

Tuesday, 30 December 2008

Feeling slightly better today.

I had quite a good night last night and am feeling a bit better today. I am still bunged up and muggy but feel very well in myself. The Mistletoe has been doing its stuff and seems to have kept on top of the virus. I am going to take my 40mg tonight, I have ordered my next batch of Mistletoe which should be with me within 14 days.
I had another email today asking for info about the treatment. The emails I hae recieved have been wonderful and very positive. It is such a good feeling to give something back and to give some hope to the wonderful people who want to live and I am sure will end up being long term friends.
I went out to my friend Helen's this evening for a little bite to eat and met up with Caroline. It was lovely, the children enjoyed getting together, they will be back to school next week.
The children and I have our fancy dress party tomorrow, it is a very exclusive event!
We will be dressing as fictional detectives.....should be interesting!!!

Monday, 29 December 2008

Good luck fellow sufferers.

I have been contacted by 6 people since the publicity about my treatment. All of them have contacted Professor Vogl and I wish them all the luck in the world. Chris is of to Germany the beginning of January and Nicky is arranging her first appointment.
Jena has already been for her first treatment this month and will get her results next month and I am waiting in anticipation for a good result.
Chris and Nicky have also contacted Park Attwood clinic about Mistletoe treatment which helps with boosting the immune system and with symptoms of chemo therapy.
All contact information for the treatments are on the links on the main blog site.

Chemoembolisation : A post card from Theo.

Mistletoe therapy : The Mistletoe diaries.

I am so pleased to be a part of their survival and hope they get the results and hope that I have got from it.
Any one who wants information or would just like to talk can contact me by email

Phu_phita@hotmail.com

or call me on the number on the contact page.
I can help with answering questions about my procedure and experiences but I cannot help with medical information.

Good luck to all of you and all the best for 2009, lets make this the year we change the views on treatments for Mesothelioma and give the UK sufferers something to hope for.

British lung foundation survey

The british lung foundation are conducting a survey about Mesothelioma patients and their experiences of services available.

"This British Lung Foundation survey has been developed for people with mesothelioma, their family members and people who have lost a loved one to the disease. We would be very grateful if you would take the time to fill out this survey and tell us about your experiences. This survey will help us to understand the needs of people who have been affected by mesothelioma. It will also form our campaigning messages for next year’s Action Mesothelioma Day."

http://www.lunguk.org/media-and-campaigning/campaigns/survey_of_mesothelioma_patients.htm

Would you please take a few minutes of your precious time to help with the survey.
Thankyou.

Feeling better today.

I had a better night last night. I was up around 2:30am, coughing and spluttering. I made myself a drinking chocolate and put some albas oil on my pyjamas which helped a lot.
Richard was late for work this morning and was told not to bother coming in. He was working at a fish factory, I know he can do better than that. At least we won't have the smell of raw fish around any more.
I think he is dissappointed but he was finding it hard to get to the place. He was getting up at 4:30 am to get ready and coming home around 3pm. He was then on his computer until 10:30-11pm which was too much.
He has a couple of jobs to look into.
I am going to chill out today and stay home as I have wasing to catch up on.
Yeasterday was interesing at work. I wasn't on the phones, I was learning something new. It was a nice change. I look forward to doing it again.

Sunday, 28 December 2008

Sight for sore eyes

I had quite a restless night last night. I eventually got to sleep and was woken by Richard's alarm. I was so cold I ended up have 4 blankets, a bobble hat, bed socks and the kittens keeping my feet warm.
I took my mistletoe last night and I think that is why I was having the cold shivers. It is kicking the backside out of this cold. I was ill again as the immune system clears out the body to concentrate on fighting the flu virus.
I am working today although I did not feel like it. I will manage though as I am off for 4 days so it is bearable.
Well.....I must go and get ready for work. Hopefully I will have a better night tonight.

Merry flu-mas one and all !!

It is 2:00am and I am bunged up with a rotten cold. It started a few days ago and the mistletoe seems to be kicking in.
Yesterday I was ill as the immune system clears out the body when it is busy....hence the illness in the bathroom yesterday.
I took did my jab last night and hopefully that will kick the flu into shape.
It is good as it shows the the mistletoe is doing what it should and is fighting the enemy.
I went to work yesterday and was shattered when I came home. I need a magic housekeeper fairy for when I am away as she would welcome me into a tidy house, not the student hostel it has become.
New year will bring in new rules. There will be a big shake up here.
Well.....I am off to bed to try and sleep as there is another busy day at the office today....hope I can stay awake long enough : )

Friday, 26 December 2008

Lazy day today

I have decided that today will be a lazy day. I am back to work tomorrow so am taking advantage of my last day off as I will be at work fully now. I am thinking of adding back my 2 hours that were removed while I was having the treatment in Germany. I am going to have to do 10 till 10 3 on 3 off. I need t get back to normal at home and get the children doing more around the house. I have tomorrow and Sunday to work and am off for 4 days, that is when the new routine will come in.
Hopefully, we will all pull together and help out as there are 3 adults in this house and 1 12 year old.
There is no reason for our house to look like a student hostel.
Any way....it has been a lovely Christmas and Kieran and I will be visiting his friend later today. He also wants to do a puppet show....should be interesting !!

Thursday, 25 December 2008

A Merry Christmas to all

who log on and sBoldupport

Mesothelioma and me,


From Debbie and family x x x

Wednesday, 24 December 2008

Up early and off for breakfast.

I was up at 6:30 am this morning and got ready to go into Plymouth city centre for breakfast with my sister. We have done this on the previous 2 years and decided to do it this year as well. We got a parking space as soon as we got there which was about 8:ooam. We had a coffee and a chat before making our way to the local BHS for breakfast and it was lovely.
We picked up some bits and pieces we needed and spent the morning chatting and looking around before coming home at around 12:00pm.

I wanted to have a little pretend cinema at home with Kieran and settle down to watch Home Alone, that didn't happen as he wanted to play on his wii.
He is staying with his dad tonight and I will pick him up tomorrow lunch time.
I am really looking forward to spending the day with my 3 wonderful children.
I have had my Christmas present already, and I am so go ing to enjoy this one.

I hope Santa brings all who log onto meso and me what they want this Christmas.....I have told him you have all been so good ; )

Tuesday, 23 December 2008

Remembering Philip Branch

Today's blog is dedicated to Philip Branch who passed away peacefully on Thursday 18th December after a long battle with Mesothelioma.

His son, Steve, and his family got in touch with me in February after he had had Chemotherapy treatment. The family were hoping he would be well enough to go to Germany for the chemoembolization treatment.
He unfortunatley became too ill to travel and never got the oppurtunity to find out if the treatment would have worked.
Philip is one more reason why the treatment needs to be here in the UK.
He is one more spirit that will go forward and help change the way Mesothelioma sufferers are treated in the UK.
I am sure I can say on behalf of everyone who logs onto Meso and me that we send our heart felt condolences to his family as it is difficult enough losing someone but Christmas seems to make it harder. We are thinking of you in your time of need.

Monday, 22 December 2008

Pantomime time

I had a busy day today. I was up at 6:00am to take Richard to work for 7:00am. I went to Asda as it was early, it was lovely and quiet. I got home and thought I would rest my weary head on the sofa for a quick snooze when my mobile phone started to ring. It was Richard, he had been poorly, bad and sick at work and asked if I could pick him up. Off I went, the good parent I am : ) .... and picked him up. I then went into work to see my work mates and to give my secret Santa gift in.
I then went with Kieran to the local Theatre, we watched Lesley Joseph and local west country comedian Matt Slack absolutely mess up there lines and take abuse from the children in the audience. The pantomime was brilliant, at one point the fairy godmother, Lesley Joseph, said that Cinderella was the most beautiful girl in the kingdom, well not as beautiful as the fairy godmother though. A little voice from the audience corrected the fairy godmother and told her she wasn't beautiful, she was ugly, which had the actors laughing and messing up their lines.
Kieran didn't stop laughing, he wasn't too keen on going as he says Cinderella was for girls, he soon changed his mind and is now looking forward to next years pantomime.
After that I went home and dropped Kieran and went out to work to collect my secret Santa gift and it is lovely. It is a snowman mug with a lid and the most gorgeous little spoon.
I love it and look forward to putting my feet up with my new mug and drinking chocolate. My day didn't finish there, I got home after visiting work only to find that my son then wanted me to go with him to his friends house to pick up a computer. It is now 21:52pm and I have managed to sit down and make myself something to eat. ....... Phew!!!

Sunday, 21 December 2008

It's been a lovely day

Kieran and I went to the salvation army children's carol service with my friend, Helen and her family. A little girl was chosen to play an angel, she was about 3 or 4 years old. She was asked to tell Mary that God was going to give her a special baby, the little girl added that she also had new shoes! It was charming....a lovely little service with all the children getting involved in the nativity scene.It was lovely.
We then went back to Helen's house for a bite to eat and to let the boys play the wii games Kieran had received for his birthday.

I did my mistletoe last night. It is geting very easy now to do the inections. Wow.....did I just say that! I do feel it has a lot to do with my results from Germany.
The German national health service recognises the benefits of mistletoe and gives it to cancer patients on their NHS.

Christmas train tour.


Kieran enjoyed his Christmas train tour. We watched trains come into the station and roll out again. He told me the times and destinations of each one.

It is so good to see that little face light up when he is there. He really enjoys it. We had a drink and stayed for around an hour until he said....... wait for it......... he was bored!

Wow.....didn't think I would hear that one : )

He is staying with his dad tonight and going on a Christmas bus tour tomorrow....it is good to share : )
I have been answering a lot of emails about the procedure and it is now turning into a full time job, I love it as it is hopefully going to give people something that I have, hope.
Poor Professor Vogl is going to inudated with quereis about the procedure, he is going to be a very busy man.
It is all good though, it is so rewarding to be able to help people who thought they had to sit back and accept what has happened to them. It has given them an option they didn't think they had.

Early start today.

Yawn ........ I was up early this morning to take Richard to work. He is doing well with the job. This is his third week working in the local fish factory. I came home and fell asleep on the sofa only to be woken at 7:30 with a little kiss on the cheek from Kieran.
Kieran and I are going on a christmas train tour today. He is looking forward to it.
Not sure how long we will stay there. We are out to his friends this afternoon. His friends mum, Helen, are going to a childrens carol service with the salvation army. She has invited Kieran and I along, sounds lovely.

Saturday, 20 December 2008

Kieran's Birthday party

Kieran had a lovely time at his party today.

He had a game of bowling with his friends and had his 4th Birthday cake!
He had a birthday cake last night, one at school and another his teacher had bought for him.

600th post!!!

There have been 600 blogs since I started this website, that is a lot of talking!

Its what I do best : )

There has been more interest in the treatment I have had, mainly from sufferers. I hope they all get the results that I have recieved. I have taken it upon myself to find a treatment in the hope that it will be available in the UK to help others. It is going to be a battle with the department of health but I am prepared to fight. Mesothelioma sufferers need hope and this treatment maybe it.
Kieran has his birthday party today. He had a lovely day yesterday. We got him wii music and wii games show which he loves. He stayed with his dad last night and is looking forward to seeing his friends today.

Friday, 19 December 2008

Newspaper articles.

I have posted the links to the Evening Herald website which has 2 articles printed this week about my chemoembolization treatments.

http://www.thisisplymouth.co.uk/news/Miracle-cancer-care-gave-life/article-556677-detail/article.html


http://www.thisisplymouth.co.uk/news/Debbie-happily-shocked/article-552310-detail/article.html

BBC TV news 17th December 2008. Unfortunatley the BBC called Dr Vogl Josef, his name is Thomas and they got the procedure wrong. It isn't chemo imobilisation. At leats there is some publicity for the campaign. Link below:

http://news.bbc.co.uk/1/hi/england/7788839.stm

Woo hoo.....Mistletoe season.

Heather, a great friend of the site has found a link for Mistletoe. The article says that it may help to kill off cancer cells while protecting good cells. Studies are being carried out in Australia who are miles ahead of the UK where Mesothelioma is concerned. I swear by Mistletoe and know that my injection twice a week have made a big difference to my results. If the link doesn't work, go onto the news item and scroll down to it, it is about the 4th story down.

The link is below.




Abba night

Yesterday was wonderful.
Kieran's carol service at school was brilliant, it was a joy to see the childrens work perfomed in the local church.
I went out to lunch with another 3 of my wonderful friends. Julie, Tina and Helen. We had a great time and it was good to see them before Christmas and celebrate my news with them.
In the evening it was the Abba night. My sister, Wendy, and I had hired costumes to go to to the night out. We had a wonderful time, we went with Becks, my work colleague, and her friend, Lyn, Wendy's future daughter in law Caroline and Kim, the mother of Wendy's grandaughter, Tyra-Leigh.

The only downfall was the toilets as it was a very expensive hotel and apparently, someone had decided to use the floor to pee on rather than the toilet, dirty girl. I did make it known we weren't happy with that as did a lot of other people. It didn't spoil our night though and once again, I celebrated my news.

Happy Birthday Kieran.
A very happy birthday to my little boy, Kieran who is 12 today. Rich, my other son, took him out for a meal in Mc Donalds last night which he enjoyed. He is stying home for a short while this morning as ITV are coming to my house to film . He is having a birthday party tomorrow with his friends.

Happy Birthday Kieran, have a great day, love mum x x x

Thursday, 18 December 2008

Remembering my Dad.

I went to the rememberance garden yesterday to leave some flowers for my dad. I went with Kieran and Richard, it got a little emotional , we wished him a happy birthday and told him to enjoy his day with my cousin, Robert.



I went out for a meal on Tuesday night with some very good and, I hate this word, old, friends of mine. We have known eachother for 22 years and have kept in touch although we don't see each other as much as we would like to. It was lovely to catch up and celebrate my great news with them.
Last night was the team night out from work. We went to Frankie and Benny's in the Warner village Plymouth. It was so brilliant, they are a great bunch of people and we had a wonderful Itime. The evening was finished off by a brave few who decided to take on the scary ride in the complex. It was stomach churning just watching the module take off and twist in the air. We heard some faint cries of anguish from the courageous ones that had gone on.
We had a really reat night.
I was going into the ITV studios this evening but that has all changed now. They ae coming over tomorrow morning to do some filming instead.
Kiera was looking forward to going in the studio, I am sure if I asked they would let him have a look around.
Today is his carol service at school. It has been an amazing year and long may it continue.

Wednesday, 17 December 2008

Happy Birthday Dad.


Happy Birthday to my lovely Dad who I still miss very much.
He would have been 71 today. I was wishing he was with me when I had the procedure last week, I just wanted him to hold me and tell me everything was going to be ok.
I am going to visit the cemetary when Kieran gets home from school and lay some flowers down for him.
Happy Birthday Dad,
You are forever in my thoughts and my heart.
I know you are near me every day.
Miss you so much.
Your Daughter, Debbie x x x

TV and papers.
Today has been busy as the BBC have been around to do a story for the local news.
I have had journalists calling and will be going into the local ITV studios tomorrow to ave an interview.
I am gong out with my work mates tonight for a meal and tomorrow I am out with my sister, Wendy to an Abba night.

Monday, 15 December 2008

Kieran's Christmas Carol.


I was so pleased to hear that I could see Kieran's play in school today. He performed it for his school on Friday and I was in Germany and missed it and that was upsetting, Kieran told me his teacher said I could go and see it today. It was wonderful, he played the part of Scrooge from Charles Dickens tale " a Christmas Carol" and he was brilliant.

Well done Kieran. I took my sick note into work after seeing my GP and informing him of my good news and got down to writing a few emails to try and get this procedure in the UK.

Great results from Germany

It has been an amazing few months. I returned from Germany on 14th December and have been given the best Christmas gift I could ever wish for.
I had my last procedure done on 12th December and Professor Vogl told me it had shrunk again....another 10%!
That is 53% gone now....and it didn't stop there!!
When Jeanette and I went to see him for the consultation later that day, he said that the tumour was dead....sorry Theo....thats a bit harsh.... I asked him if it wold come back and he said it may not.
I was overjoyed and am still elated by the news. I cannot take it in at the moment.
I said I wanted to get the procedure over to the UK and he said I would have a better chance of getting a rocket on the moon.....I love a challenge...so I am looking for my rocket.
I cannot believe that Jeanette and I have finished our adventure ad we have got such a wonderful result. Jeanette has been a great support to me. She has done so much, leaving her family to support me.
I hope she knows that Iappreciate what she has done for me.
My next appointment will be in March for a scan. I will travel to Germany and see Professor Vogl who is following up on the progress. By then the tumour should be virtually gone....yay!

Sunday, 14 December 2008

Back home, tired and very, very happy

I arrive home at round 7:45 pm, it was good to see Richard,Siobhan and the kittens. Kieran came home later as he had been staying with his friend while I was away.
I still can't believe the news....53% gone.....Partial remission and Theo may not come back.
He has emptied his cupborads and taken all his belongings with him. He obviously wanted to get settled before Christmas.....No problem there.
I still feel a little nauseaus and tired which is normal but so very happy.
I also had another great suprise...I can see Kieran's school play. He is doing it again tomorrow for the little children and I am going to see it.
I am getting a sick note as well that needs to go into work. Jeanette and her partner, Mark have been wonderful. Taking me to Bristol and back and Jeanette has been a true friend, she hasn't left my side through all this treatment.
She has given up so much for me and I really appreciate it. Thanks Jeanette.
Well..... I am off to bed now....all back to normal tomorrow, with one small difference....I have a furture to look forward to!!!

Friday, 12 December 2008

Great result today.

Jeanette and I were up early this morning for the appointment. I was a little weepy as Kieran was doing a play in school called the Christmas Carol and he was playing Ebaneezer Scrooge. I was gutted at missing it but knew I was doing the right thing. The procedure went very well and Professor Vogl told me another 10% had gone Woo hoo..... He said I was now in partial remission and we could say the tumour was dead. Theo must love it here and he has been enticed to stay longer by the Christmas festivities....you enjoy it my son....I know I am!
We are staying over night tonight and tomorrow and will travel back on Sunday.

Wednesday, 10 December 2008

Much better day today.

Today has been a much better day.
I was quite depressed yesterday and seem to get like it just before a CT scan or treatment. The picture is of the dishes I came home to after work last night and were still there grinning at me this morning. I left them there and went out.

I went to Trago Mills in Newton Abbot with my sister, Wendy and my friend, Helen. It was wonderful.
We went on the Santa train which was wonderful, I pursuaded them to go on it and the trip was great.
We had a free mince pie and went into Santa's grotto. Santa's first words to us a s we pulled up in the train was "your not sitting on my lap". He was very generous though and did give us a little gift each. We had a packet of sweets each.
My sister, Wendy on the Santa Express at Newton Abbot. Helen and I on the Santa Express.


Me with Santa.
After that we went shopping....it was wonderful. We found a quaint little sweet shop which sold all the sweets we remembered from long ago when we were all young.
I have a great day today I love my children to pieces and will miss them a lot when I go to Germany tomorrow. I really hope that I get a good result and can have more time with them. I just feel a little let down at the moment but then again, I suppose what is happening at home is normal for all families.
I did my mistletoe last night and will do my next lot on Saturday.
I don't think there will be a negative result. I am expecting around 5% change. Hopefully 5% less and bring the result to around 50%. I have bought some biscuits from Devon to give to the team and nurses as they are so wonderful. This is the last treatment as funds are very low.
I hope I get to have a chance to chat to Professor Vogl about what happens next as I am going into this completely blind, I have nothing to compare it to.


Tuesday, 9 December 2008

Hopefully a better day today.

I had a very stressful day yesterday and am hoping for a better one today. Theo was aching a little yesterday which I am sure is related to the stress. It's the little things that start it off. The dishes are still in the sink and I am on a protest now. I am refusing to do them. 
Theo was playing mind games as well. I was awake at 4:00am and thoughts were clouding my head about Theo and that he had grown. This is normal for me and probably for many others. I can't think of anything else but he has grown. I know he hasn't because I feel so well inside but that fear is lurking at every oncology appointment.
I eventually got to sleep for about an hour when Stork started his suckling on the pillow and Kieran came in for a cuddle.
I don't have to start work until 1:00pm today so hopefully it will be a little easier.
I am going up to Kieran's old school to say good bye to his headmaster as he is retiring.
He will be going to school a little later today,

Monday, 8 December 2008

Tired and cross

I was up early this morning to take Rich to work. I have done my shift for today and am so tired and cross. I came home to a sink full of dishes and a tub of ice cream on the work top. 
GGGggggrrrrrr ........... Things will be changing in the new year as enough is enough. I have a job  to support the family, Rich has just got his, Siobhan is at college and Kieran is at school. In the new year I will be having new rules. Every one will be responsible for their own mess. Siobhan and Rich are old enough to wash and dry their own clothes. I will do mine and Kieran's.
Ooohhh I feel really moany tonight. Work was very stressful with the new systems.
Well..... I am off until 1:00pm tomorrow as Kieran's headmaster at his old school is retiring and we are going to wish him all the best.

Another early start!

I was up at 5:30am this morning as Rich is working again today. He is off Tuesday, Wednesday and Thursday which he is looking forward to. I have to do a 10 hour day and not sure how I will get on with that and the early start. He will be earning a wage and next week will have to sort himself out as I am in Germany but while I am here, I thnk I need to encourage him as he now has a job.
Well....I have to go and take him to work now...the kittens are running around after each other.
Siobhan and Kieran are tucked up nice and warm and fast asleep.....Thats were Rich and I should be : (

Sunday, 7 December 2008

Naughty Kitties!

























I have included some pictures today of the kittens being naughty. Stork is trying to get the advent calendar open and Cookie just generally messing around with the table runner.

They went in the garden today, un supervised and have found their way home afterwards.


I feel so protective over them as I have had 3 cats knocked down by cars and that worries me.
They are so beautiful and I don't want to lose them.

Early start

I was up at 6:00am this morning. Rich has work and I said I would take him in. I must be crazy, the car was iced up and it was so cold. He seems to be doing well with his new job. He packs fish for the supermarkets. It is freshly caught and his job is to help with the gutting...yuk.... and packing and sealing it up ready to be transported to the shops. I don't know how long this job will last as it is quite a difficult one. The hours are early and it isn't close to where we live so he has to make the effort to get up and travel. I hope he makes a go of it, if something else comes along, at least he is working and they may look better than saying he has been out of work for over a year.
The kittens are crazy, as usual. Cookie is just naughty and Stork is a thief, he tries to steal the biscuits from the cat advent calendar.
I am back to work tomorrow and off to Germany again on Thursday.
It is going to be a busy week.

Thursday, 4 December 2008

3 days off....woo hoo

I am so tired today....I have done my 3 days at work and today has been tiring. We had new systems added to the computers and it has been difficult getting used to them as some of the applications don't stay open for long. I had some good news though....I won the community competition. We had to re- word the 12 days of Christmas song. It was called the 12 Daves of Christmas ( Dave is an application used by the employees to add comments about how the systems and procedures are going and any problems/comments can be added by employees).
My song was chosen as the best one.
It goes something like this....

On the 12 th day Christmas my true love sent to me....
12 Drummers roaming
11 Orange Dongles
10 Lords a texting
9 ladies texting
8 maids a calling
7 phones a ringing
6 Screens for saving
5 gold numbers
4 calling tunes
3 photo texts
2 true tone songs
and a game down loaded for free.


Tuesday, 2 December 2008

Mistletoe tonight

i did the first day of rotation today. We all got Orange Christmas hats to decorate and little tasks to do up until Christmas. 
I came home absolutely shattered and Rich had some more good news. He got the job he applied for yesterday, in a fish factory and has also had a call for another job interview. He has the interview with B & Q tomorrow. He has to make a choice if he gets both jobs. Typical....out of work for 3 years and 2 jobs come along!!
I did my mistletoe jab this evening, 40 mg. I am so impressed with myself as the more I do the jabs, the easier they are getting and the less they hurt.
My sister is coming in tomorrow to help me out with the house work while I am out. Wendy, you are a star....xxx

Monday, 1 December 2008

Breakfast and coffee morning....such a busy day!

I had breakfast with my some of my friends this morning and then went onto a coffee morning organised by Jackie Lowe and her family. It was good to see Jackie and her sister, Tracey, mum Jan, Julian, who is a solicitor, Carol Lamb and her daughter Kelly with her new baby boy. He is absolutely gorgeous and was enjoying all the attention he got.
One of my friends came with me and enjoyed the morning. I showed them my DVD that Gary and Kristy made and they loved it.
I dropped my friend home and picked up Richard as he has a job interview this afternoon....yay!!
He needed to get a new pair of trousers and I needed a few things. When we got back, Siobhan had gone out and silly me....I hadn't taken my key. I tracked her down, she had gone out for lunch with her boyfriend. Rich and I went out and got the key, we got back around 2:35pm.
We got home, had a quick bite to eat and waited for Kieran to get home.
I have got to sort out the washing as I am back to work tomorrow.
My sister has volunteered to help me out with the housework once a week....she is a star. She will be in on Wednesday and has strict orders not to touch the cat litter tray or the bedrooms as that is too much to ask. Just getting the basics done is the main thing.
I can't believe that I will be off to Germany next week for my final treatment. It has to be the final one as funds are very low.
I am looking forward to seeing Christmas in Frankfurt, I know Jeanette is too and I hope she is feeling better as she has been off sick.

Sunday, 30 November 2008

This picture is from the Orange christmas party. I am with my lovely friend, Rae, who is absolutely goergeous. We had quite a good night, I wasn't drinking as I was driving so that meant I could remember exactly what happened that night.

I took my mistletoe last night. I upped the dosage to 40mg so it is now 40mg twice a week. I am still convinced that the mistletoe has had a lot to do with my result as it has boosted my immune system and makes me feel so well.
Kieran's Christmas cake
Kieran finished off his Christmas cake today. I did most of the work as is usual but I think he enjoyed decorating his cake and enjoyed licking the chocolate bowl the most.




Saturday, 29 November 2008

The morning after!

I enjoyed the party last night but I did find it a little flat as I was on my own for a while before I met up with my friends. There was a band playing who were very good and some break dancers who seemed to defy gravity!!
I met up with somewonderful people who had had a few drinks and words and compliments were flowing from their mouths about how inspirational I was.....I find that hard to believe as I am only doing what anyone would do i my position....I want to live.
It was very sweet of them to say it though. I picked up my team mate Debbie around 9:45 as she was working late and met up with my other friend, Rae.
We left at 12:30am and I took Debbie home, She was a little the worse for wear but at least she got a little home ok.
It was so cold last night, I was dreading getting out of my little car to walk back to my house.....BBBbbbrrrrrrrr!!

Friday, 28 November 2008

Get ready to party.....Orange party!!!

I had a terrible morning this morning. I had a bit of a cough in the night, my own fault, too many sweeties!!!
Theo was playing up a bit but that soon died down. I got back to sleep only to be disturbed by Storkie and his usual suckling. I called him Bitty and got a whack from his paw.....Sure he thinks he is human!
Eventually got back to sleep and then THE ALARM WENT OFF : ( !!!
When I did get up and dressed, I had breakfast and went out to the car....she wouldn't start...flat battery as it was so cold.
I called the RAC at 8:33am and was told that a mechanic would be with me by 9:05am.....I was on my way to get a cake for Kieran as he has a school fete today and he is going to school in his civilian clothes and payment is 1 cake.
The RAC man....a very, very nice man..... turned up around 8:30am.....Brilliant!!!
He jump started my car and said the battery was knackered, it was a second hand battery from a couple of weeks ago. He said he could put in a new one at a cost with a 3 year warranty. He told me about other dealership that sell cheaper batteries but I said I would have one from him as it would be more convenient.
Irt was all fitted and woring by 8:50am....wow......excellent. I went back in doors and put my face on and went off to the car and on the way realised I ADN'T TAKEN MY PILLS, HRT AND THYROID PLUS MY SUPPLEMENTS!!!
GGgggrrrrr..... Richard put Kieran on his bus and i got a cake from the shop, raced around to Kieran's school and then off to work.....phew!!
I finished work at 5:oopm today and am going to get ready for the Orange party tonight. Kieran doesn't want to go to his school fete as the Jonas brothers are on TV and Camp Rock is on as well.
At least I have time to get ready now....should be a good night. Theo will be accompanying me and will hopefully be too busy with socialising and won't bother me.
My friend, Jeanette hasn't been well and has been off work a couple of days. Get well soon jeanette and see you soon x x x.
Right, I am off to get ready........bye!

Thursday, 27 November 2008

2nd day over

I am feeling tired today. I did my shift at work which was good. I remebered my lunch today.....!!!
I have been watching I'm a celebrity ...get me out of here and I ust admit Timmy Mallet hasn't dissappointed me....he is still an annoying idiot.
I am sure the public will keep him in as he annoys the others.
I enjoyed watching Johnny Lydon on a previous one a she was hilarious and I would like to see him on TV a lot more.
He and Sid Vicious were my early punk heros.
Kieran has Mufti day tomorrow and he is supposed to take in a cake....I forgot to get one so that means get going to the shop in the morning.
Hopefully it won't be likeTuesday morning!!!

Good morning Storkie!!!

I was awoken this morning at 5:43am by Stork the kitten and his usual suckling. He likes to snuggle up beside me under the bed clothes and suckle the cotton pillow case. He is such a lovely little kitten but the suckling can be annoying. He leaves a very soggy patch were he suckles the pillow andif I turn over, I get a face full of it.
I eventually got up at 6:55am after giving up tryin g to go to sleep.

I gave the kittens their breakfast and turned the tap on a little for Cookie as she likes to play with the water, it seems to fascinate her.

They haven't been in the garden much at the moment as I don't want to lose them.
They will venture out soon I am sure. We will have to do it when Kieran isn't around as he gets to stressed when they are out. He can't cope with them hopping over next doors fence.

Wednesday, 26 November 2008

Yay....I am going to the party on Friday!!!

I went to work today.....My start wasn't very easy. I went to the shop to get some dish washer tablets as we had none left. (We have forgotten how to wash dishes by hand !!!) I asked Richard to get Kieran ready for school and went off. On my return, I saw Siobhan at the bus telling the escort that Kieran had no shoes or socks on!!!
I said I would drop him to school as it isn't very far from where I work. I hurriedly picked up a bag containing my lunch and took Kieran to school. I carried onto work only to find that I had picked up a different bag. My luch was still at home.....gggrrrr. Then to top it all.... the canteen electrics weren't working and there was no coffee machine and no meals .... aaarrgggghhhhh!!! (my dad loved that scream from the comic books)
My first call was a little heavy as I was called an idiot when I was trying to explain something to a customer and I started to think.... is it all worth the effort?
Well it is.....I had a lot of very happy customers who outweighed the one I got first thing.
Great morning : (
I did my 10 hours and was thrilled when my TL said I could have a couple hours off on Friday.
Kieran has a Christmas fete at school and there is the Orange Christmas party.
It will be good to go and spend time with my team mates as we don't usually get much chance to talk to each other while we are working.
I had a lovely letter from Jena who has been to Germany for treatment which will hopefully help her. It is such a good feeling to be rewarded with news that someone else has been given hope and hopefully more time with their family.
She will go back to Germany in January to find out the results of her first treatment and I really hope it has worked for her.
She can hopefully enjoy this Christmas feeling a lot more positive than she has for a long time. Good luck Jena.... I hope it works for you.

Tuesday, 25 November 2008

Shopping with my sis.

Kieran went off to school quite happily this morning and I went out with my sister. We went for breakfast in the usual place, Bowlers cafe in Chaplin's superstore, Plymouth. We then picked up some more Christmas decks as the ones she bought were stapled together but not correctly. We changed them and then went into town to look for Christmas pressies. We went to a fancy dress shop and picked out our outfits for the Abba night in December.
I am going to wear a white catsuit with blue and white frills on the legs and arms. Wendy is going to wear a yellow tunic and shorts. We are going to look so cool!
The children and I have sorted out our differences, I think! Rich cleared up the kitchen and even sorted out the kitchen cupboard!
I am back to work tomorrow. I have to do my Mistletoe tonight, 40mg, I am going to up the dosage at the weekend as I only take 20mg at the moment but I don't get many side affects from it.
I am absolutely sure that the Mistletoe plays a large part in my tumour shrinking.
Theo has been very quiet lately, I like it that way and I hope he has got his tree up in Germany and is ready for the festive season, Go for it Theo, have a great time.

The morning after

I am feeling a little guilty this morning for going off on one last night but I do think that some things needed to be said.
I am going out with my sister today which will be nice. Siobhan has gone to college as I had a word with her last night. She shouted from her room last night telling me to turn the TV down. I asked her to come down and tell me in a proper manner as I am the only one who works in the house and support everyone and I will have the TV as loud as I want to.
I hope we can work things out, it is like most families, they all fall out at certain points and usually make it up.
I want them to understand how hard I work to support them all and we do have a good life at the moment.
I don't feel like this all the time but it has come to a head as the housework and washing is a joke at times. I feel I am the only one who wants a tidy house. Coming home to a dirty wok, pots and pans and dishes in the sink and no meal made after a hard day makes me feel so disrespected.
I try and make a meal for them when they are busy but it isn't always reciprocated.
I am going to ice the cake tonight with Kieran and will take some to work for my friend, Barbs who loves Christmas cake. I hope it passes her inspection!!
I must remember not to have too many rum and cokes when making Christmas cake!

Monday, 24 November 2008

What is in my head?

I have just had a heart to heart with Rich and it was difficult.
I was trying to talk to him about getting a job and that I want to know that my children can support themselves when it got a bit out of hand and I started to have a few tears. I told him that I didn't bring my babies into this world to leave them and how I never asked for all this.
Siobhan, I would like to think, will be self sufficient as, hopefully, she is at college and has her boyfriend who will help her and support her. Rich has no one and needs to get a job. I don't think either of them realise the seriousness of the situation and they don't talk about it and it is crushing. It is the most difficult subject I will ever approach with my children.

The only one I should be concerned with is Kieran.
I don't know what to say or how to approach it.
Yes I have had a good result from Germany and I hope it continues, but I don't think either of them realise how I really feel.
I would like a lot more support with the chores around the house as when I am working, I come home to a student hostel!
I find it really difficult being the mum and dad in this family.
Some of this is the rum talking, had a couple this evening, but maybe it needs to be said !

Busy day today......shopping is hard work.!!!


Kieran went back to school today and I went into town with my friend, Tina. We had some retail therapy which was very tiring!

I got home and prepared the ingredients for the Christmas cake Kieran and I were making. We didn't make it yesterday as I got very lazy and when I did get a chance, it was an hour between making it and going out to eat with the family.
We made our cake this evening....I think I did most of it!!
Well....it is smelling lovely and hopefully, will look as good as it smells.

We will decorate it later in the week. I think it will be 2 chocolate yule logs.
Tomorrow I am out with my sister as we need to get our costumes for an Abba night coming up soon. I have a lot of socialising going on from this week, the Orange Christmas party, the Abba night and nights out with my team at work, not forgetting the nights out with my lovely children.

Sunday, 23 November 2008

Lazy day

I have a sore throat this morning, I have had it all week but it has been bearable. This morning it was a little sore and I couldn't talk properly but that was soon remedied with a cup of coffee.
Kieran and I will be making our Christmas cakes today which should be fun.
The kittens are crazy and enjoy chasing each other around the house to Kieran's delight.
He has really got into his Jonas brothers music. He has also said he likes high school musical 3 and is going to see it with is dad.
I am so pleased to see him develop his own personality and tell what he enjoys listening to.

Saturday, 22 November 2008

My little bean is home!


Kieran came home this evening after a week away at a farm and a football match today.
We have all missed him and we heard about his adventure on the farm.

He helped to clean out the donkeys and cows andtried some different foods. The football match was between Plymouth Argyle and Cardiff.
Argyle won 2-1 which Kieran was very happy about and would consider going to another match.
The football team gave his school free tickets for any children who would like to go. They gave him a really good afternoon out.

It is so good to have him back home.

We are making a Christmas cake together tomorrow which I hope he will enjoy doing.

I have bought him his own apron and will prepare everything tomorrow.

Welcome home little bean, we missed you so much and are glad you enjoyed yourself x x

3 days off!!!

I have just finished my rotation. I did 2 out of 3 days and it has been a very pleasant couple of days. I am getting to know my team members now and we are all supporting each other with any issues we may have. I have a party next week, it is the party that Orange organise it for it's employees and I am hoping to have a couple of ours off as I am working until 8:00pm.
I will find out next week if I can go.
I have found more information about the court case from yesterday as it was reported in my local paper.

http://www.thisisplymouth.co.uk/news/Victory-asbestos-disease-legal-fight/article-493836-detail/article.html

I hope that this ruling is recognised and the insurers don't win their appeal. They squeal and squirm their way out of acknowledging the liability.
All we need now is the pleural plaque illness recognised as there should be a payment available to anyone who pleural plaque, why should anyone have to wait until they get Meso.
My dad was one of the luckier ones, if I can phrase it that way, as he got a payment before it was abololished.

Friday, 21 November 2008

Happy Birthday Jeanette.


A very happy birthday to my friend, Jeanette, She has been so wonderful this year and I really do appreciate all the time she has given me. She has joined me in Germany for every treatment and has been such a great support to me.

Happy Birthday my friend....have a wonderful day....you deserve it x x x

Back to work.....feeling good...

I returned to work today. 10:00am till 8:00pm is a long shift but it isn't rcket science ad it was so good to hear my customers say how helpful I had been. It was good to see my friends and team mates again.
When I came home, I had a phne call from a lady who had been to see Professor Vogl. He is going to help her and she will be returning to Germany for her frst procedure next week. That has absolutely made my day. If feels so good to have made a difference to someone so much that they may get some extra time on this earth. I really hope it goes well for her and she gets the results I have had.
I had a DVD sent to me yesterday from Gary and Kristy and it s beautiful. It is a short film about the affects of Mesothelioma on a family and I was very impressed with it. I showed a couple of my friends and they were in tears as was I.
And just one more thing to add......
I AM GOING TO SEE THE CURE IN LONDON NEXT YEAR.....!!!!!!!!
WOO HOOO!!!!!!!

Asbestos victims win 'test case'

This was broadcast on Radio 2 today and is also detailed in the link below.
Asbestos-related cancer victims and their families have won an important test case over access to compensation.

http://news.bbc.co.uk/1/hi/health/7740438.stm

Thursday, 20 November 2008

What a day!!!

It has been a lovely day today. First of all I had a post card from Kieran and he said he was having a fabulous time at the farm. I then went for lunch with my friends. I took the ex shopping for a christmas tree abd after I got home from dropping him off, My lovely daughter gave me a piece of paper and said she wanted me to book my days off at work. She had given me a christmas present early......I AM GOING TO SEE ROBERT SMITH AND THE CURE!!!!!
I have loved the cure forever but have never seen them live and now it is happening!!!!
I am so excited, I have had the best christmas gift ever with the tumour shrinking and now I am doing another wonderful thing.
Thanks Siobhan.....I love you x x

Back to work tomorrow


I had a lovely few days with my friends in Weymouth. We had a wander around the town centre on Tuesday and went to see the sand sculptures.




















We found a place called "Brewers Quay" which was an old brewery which had been turned into small shops and a museum about Weymouth. It was really intersesting and I learnt about a Weymouth local, Pat Dunn, who had become the first female referee. She fought to change the rules to allow women to become football referees and won.

Rich didn't get his job but will be going to the local hospital for an application form as he really needs to get into work.


I haven't heard anything from Kieran so I would think he is enjoying his week on the farm.


I am back to work tomorrow. I only have 2 days to do this rotation so it will be an easy one.

I am back to Germany on 11th December and will be returning on the 14th. It will then be Christmas and what a wonderful Christmas this will be again. Surving a third one is a wonderful feeling. I had a call from Bernard last night who is also doing very well and has another Christmas to look forward to. My heart goes out to Karry and her family as they will not have Tony with them this year. This is the same for other wonderful people who won't be with their loved ones this Christmas. For some of them, this is the first one they have to go through.

Tuesday, 18 November 2008

Remembering Tony Todd

I had an email from Karryanne who's father, Tony, had Mesothelioma. He was diagnosed on 15th August 2007 and has lost his battle on 16th November 2008.

He leaves behind his wife, Zena, his daughters, Stacey, Lindsey and Karryanne. He also leaves behind his grandchildren, Asa,5, Abby,4, Aiden,3, Cairan,17 months and 13 month old Farrah and another baby due in June 2009.

.His favourite song was mad world by Gary Jules.

I am sure that I can say on behalf of everyone who reads the blogs that our hearts go out to Karryanne and her family at this painful time. We are still fighting the battle and Tony is another wonderful spirit who will continue with us on our journey to some how right this wrong.

Karryanne has been very helpful in finding links and information about treatments and pain relief which has helped other patients.


Now it is our turn to help her and her family. We are here for you when you are ready, just say the word.



Todays blog is dedicated to Tony Todd and his family.





Another good day out with my friends.

Today has been wonderful. The weather was perfect, it was a little chilly but the sun was shining and it was a perfect day to stroll along the sea front. We walked to the sand sculptures which Weymouth is famous for. There wasn't much to see as it was out of season but what was there was lovely.
We had lunch and did some shopping. I saw a beautiful dress in a shop and decided it was going to be my Christmas outfit.
We made our way back to the hotel later in the afternoon and chilled out before going for something to eat in a lovely Bistro called "Westers". 
We are back home tomorrow. Richard was unsuccessful with a job he went for. He is going to look in the jobs page of tomorrows newspaper as he needs to get one.

Suzy found a link which detailed a lady in Gateshead. She is the mayor and has found out she has Mesothelioma. She is hoping she can do her term as Mayor for the year.
I have added the link below.

My illness is a death sentence - but I'm determined that I'll see out my year as mayor; GATESHEAD'S LEADER TALKS ABOUT HER TIME AHEAD
Evening Chronicle (Newcastle, England)

http://findarticles.com/p/articles/mi_6783/is_2008_June_16/ai_n28534278

Monday, 17 November 2008

What a brilliant night


I arrived in Weymouth at around 2:00pm and have had the most amazing day. My friends Chris, Beck's, Jeanette and I had lunch and a look around Weymouth and were joined later by my cousin, Richard and his wife, Linda. We had an evening meal together and caught up on old times while Chris, Beck's and Jeanette got sorted out for the evening as Jeanette needed her coat. It is a little chilly here but not as bad as Leeds!
They met us in the Ship Inn and had a meal. When we left, Linda and Rich were traveling back to Sussex, We went to see the film "Mama Mia"  which was brilliant. Beck's had seen it countless times but still enjoyed just one more shot. I sang most of my way through it and advised Jeanette to tell me to shut up if I got on her nerves. We wandered back to the hotel room to settle for the night. I have really enjoyed myself and am a little tiddly for the wine I had. The wig moved a little but not enough to embarrass anyone but me! Oh dear......I may regret this in the morning!!!!

Saturday, 15 November 2008

Wrapping up and chilling out.

I have been wrapping Christmas presents today and getting Kieran's suit case ready for his trip on Monday.
I will pack my bag tomorrow and will be off to Weymouth....nearly wrote Germany then.....as I will be staying there for 3 days and back to work on Friday.
I chilled out in front of the TV and watched Columbo, one of my favourite TV detectives. Siobhan and Richard watched it as well as they love him!
Kieran will be back home tomorrow as he is with his dad for the weekend. Kieran rang me and told me all about his train tour he had gone on with his dad.
I am going to make a Christmas cake with Kieran, that will be when I am off on a weekend soon. I haven't made one for years and it will be good to get back into it again.
I love Christmas and my tree is very special as it is the one I bought January 2007 to use as a target to survive until Christmas and it has now become my challenge every year.

BBC interview not happening?

I am very disappointed with the reporter I spoke to at the Meso UK meeting this year.
I recorded an interview and advised of my treatment and the success of it. The radio interview went out on 13th November and it was all about Mesothelioma and people who have lost their lives to it, which is fine, it is all good publicity.
There was no mention of asbestos brought into the home from the work place and contaminating other family members or any mention of other treatments like mine that are working to shrink the tumour.
The treatment is important as there may be a lot of desperate people out there who do not want to die and should have the option to have the procedure if they want it.
May be it is because it isn't available here?
Who knows. I will be emailing the reporter with my thoughts.

Interview on BBC radio.
http://news.bbc.co.uk/today/hi/today/newsid_7726000/7726726.stm

Chris Knighton's interview.
http://news.bbc.co.uk/1/hi/health/7719011.stm

Ian Wright's asbestos warning. Youtube.
http://uk.youtube.com/watch?v=RjE_nkkfvmw

Friday, 14 November 2008

And it's up....


I did it........ I have put up my tree.....sorry Helen!

It looks lovely, I themed it blue this year as we have decorated and the colours in the room are blue and brown. I love it and am happy now it is up. All I have to do now is to inspire my 19 year old son to get a job!

Kieran in a suit.

Kieran wanted to wear a suit to school today for children in need. He looked very smart this morning. The collar is a little big as he has a tiny neck but he looked so cute.

Rich, Siobhan and I are going to get the tree up today. I have been trying all week to do it but it has been a busy week and trying to re cooperate as well, it has been impossible. The kittens are back to their normal crazy selves and running around the house like loonies.
Thinking about it, Christmas tree + Kittens = trouble!
It's a good job they are cute or else they would be going back to the cats and dogs home!

We will see what happens, my new chairs I got not long ago have become scratching posts for Stork and he has dug into the canvas on them.....ggrrrrr.
And then there is me, I am off work until the 20th November. I have been feeling very well and have more energy and less breathlessness than I have had for a long time. I feel so great inside.
I am away next week with friends. We are staying in Weymouth on Monday till Wednesday which will be a nice break. Kieran will be going off to a farm for the week so I took advantage of having some free time.

Thursday, 13 November 2008

Well.... what a night!!


I went into the city centre this evening with my friends, Helen and Carolyn, to see the Christmas lights switched on and it was an experience!

We had 5 autistic children and 4 adults, a lot of anxiety,stress, frustration and hyperactivity!

Kieran was really stressed as he wanted to go on a ride but the queue was massive, we would have been waiting for hours. We then decided that after the lights were switched on, we would go and get something to eat. As we started to leave the car park, around 50 - 100 teenagers stormed in blocking the way out. The police then followed them and advised Helen's husband to reverse back as they sorted out the issue and to wait 15 minutes. I am not sure if it was a fight or if it was a mob trying to catchup with someone who had been on the stage turning on the lights but it was frightening. Kieran was crying and started to get anxious as the car moved forward as the crowd had dispersed. He knew we hadn't waited 15 minutes and was panicking as the policeman told us to do it. Kieran is a stickler for rules and wanted to wait for the police to tell us we could go. After explaining to him that Helen's husband knew what he was doing, he eventually calmed down as he realised we were fine to leave.


We went to McDonalds for something to eat afterwards as all the children were looking forward to that. I am not a McDonalds fan but had chips and a McFlurry kept me happy. Kieran and the other children eventually settled down but us adults all agreed we would sleep well tonight!