Monday, 30 June 2008
I am sure I am coming down with it as well as I wasn't all that good yesterday and am feeling yukky today.
I am back to work tomorrow.
I went for my CT scan and got through it very well. I am absolutely brimming with confidence and happiness at the moment and I don't want it spoilt. I will be seeing my oncologist on 4th July. I hope he is positive, I need him to be. I am under no illusions with what is happening to me but I need to keep my head clear.
Sunday, 29 June 2008
We bought a sofa, a very large comfy chair and a dining table with 6 chairs.
We were very happy as we got it all for £900!
This will give us an incentive to sort out the living room as it is filled with the bedroom things.
Tomorrow I have my next CT scan and will see my oncologist on 4th July.
I hope he is more positive than he was the last time I saw him. I was told, in not so many words, to go and enjoy what I have as some people don't get what I have.
That, I felt, was a little harsh because I shouldn't feel guilty about what I have had.
It is unfortunate that someone younger than me doesn't get the many opportunties that I have had like, having children, my own home, getting married which is really life in general for everyone.
I have to say though that he has been very, very supportive with the Germany treatment and with all the alternative procedures I am trying.
We had a wonderful time and were about to leave when they came back and did an encore, my sister disappeared again.
She really enjoyed herself, I am glad she chose me to go with her as I wouldn't have missed it for the world.
Saturday, 28 June 2008
I am out tonight with my sister, Wendy.
She is a devout Westlife fan and they will be at Homepark stadium which is the football stadium used by Plymouth Argyle.
I like more passionate music as I am a punk at heart and always will be.
It will be good to spend some time with her.
I got the tickets through Ticket Master who have screwed up the postage as the tickets have not arrived.
We will have to go to the box office to collect them before the event.
I hope my sister isn't disappointed as she has really been looking forward to this day for a long time.
Friday, 27 June 2008
This one is a good clour but i little flat for me. It isn't sassy enough so I tried some others on for size.
This one is a definate no-no. It is the Victoria Beckham style and does nothing for me at all. I haven't got the pout or the will of not to smile, I am smiling inside as well as outside at the moment so this one is going back in the box.
And Finally..... this one which was the one I tried on when I saw Michelle and fell in love with it. I liked it so much I wore out of the store! I have had another wonderful day, the carpet is down i the bedroom and we can move a little more forward with the decorating.
Thursday, 26 June 2008
When we got back home we put up the swimming pool and Kieran got changed and got in. We played ball for a while before I treated them to Pizza.
I have been feeling very well after the last treatment, just a little tired. The carpet is going down in the big room tomorrow which will help a lot as we can get the clothes and furniture out of the living room and plan on getting some furniture for the living room.... Hoorah !!!
I am going into Dingles tomorrow and bying 2 new wigs as I have had my old ones for 2 years now. Kieran wil be coming with me if he is off school.
Wednesday, 25 June 2008
Tuesday, 24 June 2008
He will be in later to lay the carpet. He has organised the decorating of the house perfectly. We do have day where we have to live in certain rooms, but we have coped really well.
Next is the bathroom and then the kitchen. We can then put the house up for sale....yahoo!!!
Shadow, our lovely cat, has still not come home. We haven't seen or heard anything from him. We all miss him and hope that one day he will return. He was a wanderer with no sense of direction. He was fine until I went to Germany, Siobhan said he was crying a lot when I went. He was my lap top cat and so beautiful.
Monday, 23 June 2008
It has been great. I saw my GP and got a sick note for work and am signed off for a week. My team mates are wonderful, all 3 teams that is!
The bedroom is nearly finished so we can get back to some normality tomorrow.
Sunday, 22 June 2008
Everything went really well with the journey and we got to Bristol at around 11:45am (10:45am UK time) When I got home, Siobhan was there, Richard came home about an hour later. I went out to see Kieran as I had missed him too, he is staying with his dad until Wednesday. It was good to be home.
I will make an appointment with my GP tomorrow to get a sick note as I will need one for work.
I can feel the sickness and am feeling very tired but, appart from that, I feel good.
I keep looking at the CD Professor Vogl gave me as I can't quite believe that 10% has gone. It is like a dream come true.
I really hope more has gone next month.
My next expedition ios to Derriford hospital on 30th June for another CT scan for my oncologist. I think he will be suprised when he sees the results!
The bedroom has been started and the decorating should be finished by Wednesday I hope.
Saturday, 21 June 2008
We went into a large department store, I can compare it to Debenhams, and looked around for the Wii fitness mat as Jeanette cannot get one in the UK. We went to the toy department and there she was, Lizzy, a beautiful cat, a Steiff cat! She was quite expensive but I thought I deserved a gift, I could not have walked away from her, She is fabulous.
Friday, 20 June 2008
Well....it has happened....It's official, Theo Loves Germany!!!
I went to see Professor Vogl this morning and first of all, decided to go to the toilet as I was feeling very nervous, and then it happened.....I got stuck in the loo!!!
I was banging on the door and shouting for Jeanette and thought "oh no....will anyone miss me" , Jeanette came to the rescue and got a nurse/doctor. I eventually managed to unlock the door, the lock had got stuck....phew!!!!I then went into the theatre and Professor Vogl asked me how I was feeling and I told him I was feeling very well. I also told him that I felt my breathing was much better and was not sure if it was the tumor shrinking or my psychological thinking it.He said there had been, in his words, "a significant change" and my breathing getting better was "what he had seen".
We were very excited and after around 6-7 hours, we went to see him. He told us it had shrunk 10%!!!! we were exstatic, he was so wonderful and even let Jeanette take a picture of him!The second treatment went very well. This is the best day I have had for a long time, it is up there beside having my 3 beautiful babies.
Thank you Professor Vogl, your brilliant!
Professor Vogl has told me that there are Drs in the UK who will do the dendritic cells vaccine and to ask Dr Callebout for some names. I will do that when I get back. I am glad really as it will be ore expensive with flights and hotels included in every treatment.
Jeanette has been amazing as usual. She is asleep at the moment, I am not really sure how I am feeling. I suppose I am quite calm and not stressed in any way.
Professor Vogl is going to take the Dendritic cells today to make the vaccine.
I still don't know how much it will cost, that is my biggest concern as my compensation payment is getting low. I shouldn't complain though as there are many others who would love to be in my position finacially, I think every one should get this opportunity.
Thursday, 19 June 2008
Sounds a lot like Dendritic cell vaccine to me or very similar.
The uk is so behind in these treaments and it is so expensive for anyone wanting to try it as for most of us cancer sufferers, there is nothing else left.
More about the story is in the link below.
Wednesday, 18 June 2008
I had a restless night last night and am sure it is all tied into the stress of the illness.
I will be travelling to Bristol with my friend, Jeanette, and will add the blogs again as it happens.
The biggest issue with all of this is the money as it is all so expensive. I wish that something was available in the UK for this treatment.
Tuesday, 17 June 2008
This link will give more information.
Thanks to Sue Hall for getting the information, she also found out that parents can get their deceased childrens medical records from their local primary health care trust if they have a good enough reason for wanting them.
This is the reason I love coming to work, these guys and gals are amazing, their support is invaluable and they never stop smiling. Thanks guys and gals, your the best!
Monday, 16 June 2008
Sunday, 15 June 2008
After watching the guys arrive, we went for a picnic.
I took some pictures of the boat race taking place in the sound.
The Hoe was absolutely packed with bikers. As far as I heard there were over 5000 bikers who had taken part.
We didn't stop very long as the clouds were closing in and there were little spots of rain.
When I got home I was shattered, I still have to finish the room that James will be decorating while I am away.
Tomorrow I am going for breakfast with my friends and then home to finish....that room!
Saturday, 14 June 2008
Friday, 13 June 2008
I am going to be busy over the weekend getting the master bedroom ready for decorating. Kieran will be with his dad and I will be in Germany so it is a great opportunity to get it sorted.
Mistletoe is due again tonight. I hope I have more success than last time. I think I messed it up as I could feel the needle and it was dfifficult but I am going to persist and get it right.
Wednesday, 11 June 2008
It has been really good in work today. I really enjoy being there and talking to all the customers who come in with problems. 95% are wonderful and it is always a reward when they have been happy with the outcome of any issues they have had. It also helps having a great team. I have been really lucky as I have had 3 great teams I have worked on and made long term friendships on all of them.
I am looking forward to Germany next week as I want to know what has happened since I saw Professor Vogl last month. I feel very well and I am sure my breathing is easier but am not sure if that is psychological because of Professor Vogl's positive attitude or if it is because there is a result. What ever it is, it is good and I hope it continues.
My poor little Kieran is suffering at the moment, he has hayfever and has had it quite bad. Siobhan gets it too and I have heard that local honey makes a difference. I know Saltram House in Plymouth sell it, I am going to get some and hopefully, they will take a spoonful a day to see if it will work. Sunshine is so wondeful if it didn't have the hayfever issues. It spoils a beautiful day.
Tuesday, 10 June 2008
It was an absolutely stunning day. The sun shone and it made the trip even better. We saw the block houses which stand either side of the harbour, years ago they used to have a chain between them. Any ships who were not given access to the harbour were stopped by raising the chain so they could not pass.
Monday, 9 June 2008
Sunday, 8 June 2008
It has been a wonderful day and even the weather has been beautiful, it is perfect. Tomorrow Kieran is back at school and I will be breakfasting and then off to the Drs surgery for a blood test, The thyroid this time,
(its like pick and mix some days : )
and hopefully that will be the same. I feel so good in my self I sometimes find it hard to believe there is anything wrong with me. That is how I want it to stay, for a very, very long time!