Thursday, 31 July 2008
There is a link to send a message to Siobhan with the details of the person to be added.
I am feeling a little tired after my first full day of work today. I had my horrid, chalky protein drink which I know I have to have to put on weight.
It would be good to find one that does actually taste nice. I am now off for 3 days. Jeanette and I have decided to as Professor Vogl if I can change the appointment to 24th September as we will both be available then.
I am looking forward to seeing my team mates today as I have missed going to work. They make my working day wonderful. Our team leader is moving onto a different shift which will be sad as he is so supportive. I hope we get a team leader as good as him as he will be missed by all of us.
I am going to start the protein drinks again today as I have not been having them. The drin is supposed to taste of vanilla but it tastes of chalk!
It has to be done though as I need to go back to my oncologist knowing I have put on weight.
The symptoms seem to have gone now and I feel on top of the world.
I haven't come down since I found out about the shrinkage. I want to stay up here for a very, very long time.
Wednesday, 30 July 2008
I have lost weight as I have not eaten properly due to losing my appetite because of the treatment with the chemo, it only lasts a few days which is not too bad at all.
I haven't had my protein drinks (naughty...I know!)
I am feeling much better now and intend to put the weight back on again.
I am getting ready for the furniture t be delivered on Friday.....yippeeee!!!
I got my new wigs today and spent some time with Siobhan, we treated ourselves to some new makeup. I have tons of the stuff and need to sort it out as I am sure some of my makeup dates back to my teens!
Kieran is with his dad as he has his 3 days off. I am back to work tomorrow which will be good as I have missed my friends. I am also looking for some support for my next Germany trip as Jeanette has prior arrangements. I am sure I will find a willing volunteer!
Tuesday, 29 July 2008
I have another 2 and they are beautiful.
I have had a lot of emails keeping me busy, it is so good to try and make a difference to so many people.
I have been sending details of the chemoembolization procedure for people who are interested.
I will be remembering to do my mistletoe jab tonight as last week I forgot.
I am back to work on Thursday and then off for 3 days.
The appetite is starting to return and I am feeling much better, most importantly, so full of life!
Monday, 28 July 2008
Anymore links or information that would be useful on the site please let me know.
I now have a dining set ....yay!
My sisters husband picked it up from Homebase for me this afternoon. It has been a very productive day.
I hope this is helpful.
The bill will come into force in October 2008.
I spoke to the customer services rep and asked when the furniture would be delivered. He said it would be another 14 days maybe more so I said I wanted my money back.
He called the department in their call centre and was told the suite was in but the table and chairs were discontinued. I asked him why he couldn't refund back the money for the table and chairs and send me the suite which was in Doncaster? He said if he did that it would be a new order and it would be 28 days again. I said a big, fat NO and asked for the whole lot to be refunded. He said he would have to email a dept to cancel the order and then I would get the payment back in my bank.
GGGrrrrr........ I really liked the suite and left the store ready to look else where.
When I got home I called Homebase/Argos and asked the customer services rep for the head office address as I had a complaint. I explained what I had been told and he said the suite was ready and the delivery date was....wait for it.........1st August!!!!
He put me through to a lady called Annette who was very helpful. She cancelled the table and chairs and returned the payment to my bank account (it will show up the end of the week) and said she was sorry I had been given wrong information.
After I finished talking to Annette, the phone rang and it was the man at Homebase/Argos. He had a table and 4 chairs in store. It was the same as I was looking for but the one I originally had was 6 chairs. He said would I like to look at it and I said I would and left to go to Homebase again. After all that, we now have a table and 4 chairs and a suite that should be delivered on Friday.....RESULT!!!!
I am off to Homebase today to get my money back for furniture I order as I don't now when it is going to be delivered. I have waited the specified 28 days and have had a letter saying I will be contacted after the 8th August with information. That isn't good enough as I have been suite less for more than a month because we have been decorating.
I am going to look else where, the furniture we were going to have was perfect but I don't now when we will recieve it.
Sunday, 27 July 2008
Kieran is reciting his train timetables in the garden while bouncing his ball.
There has been a good response to the publicity and I have had a lot of emails from people wanting more information.
Professor Thomas Vogl is the Dr who performs the procedure. He works at the university clinic in Frankfurt Germany. Chemoembolization is usually performed for liver cancer but he is trialing it for Mesothelioma and so far it has been a success for me.
More information about the procedure can be found in the link below.
Any more information wanted about my treament please email me at
Saturday, 26 July 2008
I had a good sllep in the chair afterwards as I tired myself out.
Kieran h: : as been reciting his train station time tables most of the day, I don't know how he remembers it.
I went out shopping on my own and had a little space away from trains!
It has been another good day and tomorrow we will go out and visit Kieran's friend as that will occupy him a lot more......NO MORE TRAINS PLEASE ........ : )
Mistletoe tonight and I won't forget it. I am booking the trip to Germany on 18th September as I am away with the family in August and Professor Vogl is busy the week after.
I am going to get the cupboard back up in the bedroom today as the room has clothes everywhere and is driving me crazy.
Well done Jill
Jill in Texas is doing very well. She is still in hospital after having an operation on 21st July.She was diagnosed in May 1996 and was given a few months to live. She had the surgery to remove the rt. lung and was cut open from front to back. The Dr removed a rib to be able to remove the lung easier, cut through the diaphragm, it looked good. Heart looked good, but she saw "numerous tumors" in the peritoneal. The cancer had not spread from the lung.
She has has constant diarrhea due to radiotherapy 34 years earlier. This can make things very difficult. I hope Jill continues to do well. She has a name for her tumor also, Mr Meso.
Theo and Mr Meso have become very good friends.
Friday, 25 July 2008
Kieran's dad joined us as we are still good friends even though we are divorced. I was so tired on Tuesday night and forgot to take my Mistletoe injection. I did it last night and am now feeling fluey and achy which is a symptom of the medication.
I wasn't very happy with Argos as I purcased a new 3 peice suite and dining set from them which we were going to have on or around the 27th July. I have now recieved a letter to say they will contact me after 8th August as they have big demand for the furniture. They didn't say to me 'wait....we won't take your cash' so I will be calling them today.
We also had a cupboard from them which was put up a few weeks ago and te hanging rail broke. Siobhan, Seddon and I dismantled it as I was told that they would only replace the whole cupboard...ggrrrr..... and to wrap it in black bags and tape it up as I didn't have a box to put it in.
The delivery man brought the new cupboard and said he couldn't take the old one as it was not in a box and it has to go on a conveyer belt. He said he would call back the next day.....double ggrrrr. I too the new hanging rail out and put the broken one in and sealed up the box. The hanging rail broke because a large wood knot was at the centre of it.
So I now have a cupboard in black bags to put back together....triple ggrrrr....and the house is a complete mess.
Oh well......at least I can think about my wonderful result from Germany and life goes on regardless.
Thursday, 24 July 2008
It is a lovely piece. The picture is beautiful. I hope this gives the campaign a boost as I am going to start writing letters and bothering people about the treatment.
Zell Oxygen / Immunocomplex and he has found that his tumor has not grown in a year.
I have added a link to the site.
There is also a maple syrup and bicarbonate mixture that can be taken.
The sugar from the maple syrup attracts the cancer cells and the bicarbonate kills them off.
This is good information, it is getting back to the naturopathic diet.
Thanks fro the information Bernard and let me know if there is anything else you find out!
I am going to Frankfurt again in September for a 4th treatment.
This has to be arranged as I was given the 25th August but I have booked a holiday in a little cottage for the children and I and I don't want to cancel it.
I am going to celebrate with my children this evening, we will be going out for a meal.
Last year I was in Egypt which was wonderful but this one has to be the best.
Wednesday, 23 July 2008
Kieran came home from school and his t-shirt was covered in signatures. It was his last day at his school. In September he will move onto senior school.
He is going to stay with his dad tomorrow.
I am going to have a nice, relaxing bath and an early night. Tomorrow I am going to chill out.
I hope that I and many others can get the message across that there is something that works.
I went to see my GP today and got a sick note for work. I am feeling a little tired today and a slight bit of nausea. Other than that I am feeling really well.
I also went to the cemetary as I have got a plaque for my dad. It is now ready and I took a look at it. It is lovely and opposite my cousins plaque.
Wow....these protien drinks are certainly piling on the pounds. I gave a little cheer yesterday as my trousers were getting tight, Jeanette laughed as she thought it was funny to hear someone cheering about weight going on.
The BBC local news has my story on it. The bigger interview will be at lunch time and the evening news.
I want to see the chemoembolization procedure done in the UK as there are a lot of people that ca benefit from this treatment and cannot afford to travel to Germany and pay for the procedure. I am in a very fortunate position and I do realise how lucky I am.
Tuesday, 22 July 2008
It will be featured on the local news tomorrow.
I was contacted by them to do something and it feel right into place as I was going to speak to the media about something going out.
I am feeling very tired tonight. It is so good to see the children.
Jeanette has been amazing again. She drove home from Bristol and leant me her house to be filmed in.
I will pop into work tomorrow and see the guys and give them some weets for their pirate dress up day.
Jeanette drove back to Plymouth in her car while I relaxed to the sounds of David Essex. I have had a call from the BBC who I have kept in touch with and they want to do a piece to camera about the results from the chemo embolization.
This is good news as I was going to ask them about doing it. I am shatterewd but will be doing the filming today. I am picking Kieran up from school, it will be good to see him.
Jeanette and I met Dawn and her friend, Sarah at her hotel last night which was an extra bonus but has made us very tired today. We could have chatted all night. We left Dawn and Sarah at around 1:ooam and got up this morning at 5:30....ouch!!!
It was good to meet such an inspirational lady who has a lot more going on than I do.
Monday, 21 July 2008
Well I have to go and get showered. I am going to meet Dawn tonight if I feel up to it. She is coming in for her treatment and we have been in touch on email for a while. Dawn has her own website. www.wigstowishes.org.uk and has been featured on channels fours Mummy diaries. I will add a blog with the results when we return.
Sunday, 20 July 2008
Jeanette and I will be off to Germany for my last treatmnet with Professor Vogl. I really hope that I get a goos result like the last one. If not, I am happy with the amazing result already. I am not going to be angry if there is no more shrinage,. I have gained so much from this and hope to put it out in the public domain when I come back. Auf wedersein!
Saturday, 19 July 2008
The website went down because the company that hosted the website was sold and the director didn't tell us.
Apologies to everyone who tried to log on the the site. All is good now and I will update members with the information.
It has been a very busy day today. My little bean, Kiean got home around midnight last night and enjoyed his trip to Disneyland, Paris.
I dropped him off at his friends house this morning and then went into work.
I got a call from Siobhan while I was in work around 6:30pm to say the kitchen ceiling had water dripping from the bathroom.
I was going to leave at 7:00pm any way and called my friend, Wendy, who rushed around with her fianc'e to sort it out as James wasn't available.
We will get it all sorted tomorrow.
I will be leaving for Germany in the morning with Jeanette. She has been amazing, I appreciate what she has done for me, it means so much.
Friday, 18 July 2008
I am looking into what has happened.
I am waiting for a phone call to say Kieran is back and so far there is nothing.
I really want to see him and give him a really fat hug.
I hope he has had a wonderful time but I won't be able to settle until I hear he is safetly home.
Thursday, 17 July 2008
Kieran will be returning from Paris tomorrow. He is staying with his friend while I am away.
I am going to see him on Saturday before I travel to Germany.
I have missed him so much and can't wait to hear his stories about his adventure.
It will be dressing up day in work on Wednesday and I will miss it :(
I will be away from work due to the treatment. The team will be dressing up as pirates.
I hope they have a good time.
Wednesday, 16 July 2008
We went to the school coffee morning before lunch and discusssed how it would be the last one as the boys would be leaving to attend senior school in September. It's the end of an era and the start of adult hood for our boys.
I have put on another pound since the weekend!
I have been drinking a high protien soya drink which is supposed to be vanilla flavour, but I haven't found that yet. Maybe it is at the bottom of the tin.
It seems to be working. I also had fish and chips last night, Dr's orders.
I am going to my sons coffee morning today. I have decided to get a trophy cabinet for his school as a thank you as they have done so much for Kieran. He had a bad start with school as we didn't know that he had Autism at the time. It was a struggle getting him out of main stream school as the code of practice changed to include all children into a main stream school.
He has done very well at his school, his dad and I appreciate all they have done for him, hence the trophy cabinet. The trophies are earnt by the children for good work aqnd every Friday there is a good work assembly, children are chosen from different classes and for different reasons to recieve the trophies.
Chris, a gentleman who makes the cabinets, came to school to measure up the area it will be.
The bathroom is being put in today and the stair carpet is going down. Another sep towards the house sale.
Tuesday, 15 July 2008
I met my friend, Tina, while we were out. I haven't seen her for a few weeks. The place we went is great for birthdays. We took a cake in with us and when it came to dessert time, the waitress lit the candles and the place was put in darkness and the sound of happy birthday played through the speakers.
Monday, 14 July 2008
The paymants are rediculous and don't compensate towards the loss due to the illness.
I am still trying to find information about the bill. All I can find is th Mesothelioma bill relating to Northern Ireland. If anyone does find anything, can you please email me at:
This means that the flush is the button on the top. I didn't know that it had a big button to push for number 2's and a little button for the wee wee. Trivial I know but I thought it was brilliant as water is saved.
Siobhan is busy sorting out the website. The format of it will change soon and it is looking good. She has built a rememberance page and "the soap box" for information and getting to know more about the people who help make this blog so wonderful.
I bought a gift for Professor Vogl as he has been so brilliant with the procedure. I appreciate so much just what he has done for me and for my family.
He is taking a well earned break so not sure when the bathroom suite can be fitted.
Not far to go now. It is looking good.
I will be glad when it is all done as I will be able to put the house up for sale. I am not in any rush to move so we will see what happens with that.
Jill in Texas will behaving quite a major operation on 21st July and I hope all goes well for her.
She has Mr Meso to contend with. Maybe Theo and Mr Meso cold become friends and leave us alone.
Sunday, 13 July 2008
I weighed myself this morning and I have put on 2lb!
I have started to drink soya protein milk shakes and it seems to be working. I am going to do a Wednesday weigh in every week and keep track of it. My oncologist is very concerned about my weight and I need to go back to see him with weight gained. It's a shame as I feel well being the weight I am as I have reached my BMI (8st 7lb) but if he feels I need to put it on, I will do it.
I am working today and have 3 days off tomorrow until Thursday.
Kieran is having a good time, he is loving the roller coaster rides.
Friday, 11 July 2008
Work has been quite tiring today as it is the first day back.
I treated myself to a glass of red wine when I got home.
I am out after work tomorrow as my neice has a birthday meal arranged, she was 19 on 10th July. I remember being in hospital having my son when she was born ( Wendy and I were in hospital at the same time) and being very upset when my sister, Wendy, had had her baby before me. Her daughter was due on 22nd July and my son the 1st July. My son eventually entered the world on 15th July.
I look back and smile at it now ut I was so disappointed at the time.
I am back to work today and that will take my mind off it for a few hours. I have told him to text or call me to let me know he got there safely and am sure he will be fine.
I have just had a phone call to say that Kieran got to Bristol ok and the flight will be in 2 hours time.
Have a good time baked bean, I will see you when you get back.
Thursday, 10 July 2008
I am still searching for someone who can do Dendritic cell vaccine for Mesothelioma in the UK. It isn't looking good at the moment. Heather and Alan sent a link for a Dr in the UK but that looks fruitless. It is about time Mesothelioma was included in treatments and trials like other cancers. It is so widespread now and a lot more people will benefit from treatment as there is very little available. I am still looking as are all the wonderful people that support this website and we don't give up very easily. The search continues!
Wednesday, 9 July 2008
Kieran has been sick again, He doesn't have anything else wrong, he isn't unwell, doesn't have a temprature and does not have lose bowl movements. I am sure he is worried about something, transition between schools maybe, and doesn't know how to say he is nervous.
School won't have him there for 48 hours as he is being sick so he is off again. I have made an appointment with my GP to see if he agrees with me or if there is something else underlying. He won't be back at school now for over a week and this is a crucial time for him as he will be leaving all he knows to begin at the start again.
My ex, in his wisdom, booked July to take him to Disneyland, Paris, which is lovely but not a good move with Kieran and his move to senior school.
On another note, I am going to ring my oncologist this morning and find out what his secretary wants to talk to me about. I hope it is the name of a Dr who can perform Dentritc Cell vaccine.
I wait in anticipation.
Tuesday, 8 July 2008
(Not the Dr Who although that would be very nice!!!!)
I will call back tomorrow and find out.
I can't wait to find out exactly what it is he wants to tell me.
This is also the day that Kieran goes to his new school. He is going today and tomorrow to get him ready for when he starts in September.
He says he is looking forward to it and he will not be alone, his friend, Stephen, will be going with him as well as they start at the same time.
He is growing up so fast and is a lovely little boy who enjoys his trains and his games on his consoles.
We will be having a train journey on Thursday which he is looking forward to.
I hope he enjoys today and seeing his friends from his school who have moved on to the new one.
Monday, 7 July 2008
Saturday, 5 July 2008
I did my mistletoe last night and forgot to call Dr Maria last week as I have been so busy with the house, treament and all the family stuff.
I wll ring and apologise to her next week.
Just a quick note of thanks to Jill who emailed Karry about pain relief.
Thanks Jill for responding and it was very useful information.
Jill is from Kemah,TX which is near Houston.
Anyone else who has information about pain relief can email it to Karry at
Friday, 4 July 2008
I was with my friend, Jeanette and my daughter, Siobhan. We arrived there at 9:15am, we were called in early and my friend, Wendy, was late, not her fault as the appointment was for 9:30am.
At first my oncologist was bubbling about the lymph node shrinking.....yay!!!........ and then went on to say that he couldn't predict what mesothelioma will do and that the disease was now very stable. All good I thought and then I handed him the information from Germany and his face dropped. He was rather shocked to see the paper work for the 2 embolizations I have had.
He was very pesamistic about the procedures until Jeanette told him that 2 different veins were used and that she had watched the whole procedure on the screen in the theatre.
He then realised that Professor Vogl was very reputable. He asked for some more information about the procedures as he wants to know more about the area where the embolization is administered.
He then said that Chemoembolization is performed in Derriford Hospital, Plymouth for other cancers but not for Mesothelioma. He said he was going to discuss this with the radiologist and I asked him if it could be done for Mesothelioma in Plymouth as it is shown to work. He was very positive about it and said he wanted to show the info to others involved with Chemoembolization in Plymouth.
I also asked about Dendirtic cell vaccine and he is going to look into that and let me know if he can find some one in the UK who can do it. He has also commented again about my weight loss and has prescribed fish and chips 3 times a week!
He is now monitoring my weight so I really do need to start putting it back on again even though I feel better for reaching my BMI.
All in all it has been a very good morning. If I can persuade Plymouth's hospital to take on this procedure then hopefully it can be done all over the country.
My friend, Julie looked after Kieran for me as he was off school again. I went out to pick up Kieran who had been watching......guess what.........yes......TRAINS......... as Julie can see them from her kitchen window.
He was in his element. We then went into town and I treated myself to a nintendo DS and a game .... SPACE INVADERS!!!
Julie gave me a bottle of champagne to celebrate this good news.
Thursday, 3 July 2008
We then went to .....guess where........ Plymouth railway station!!!!
Wednesday, 2 July 2008
I have told her that I take co-codomal with paracetomal, Ibuprofen is something that is reccommended but I am allergic to it.Thanks for taking the time to respond and I know Karry will appreciate any help or advice she can get.Any information provided is advice only and should not be taken as medical advice. Always talk to your GP about any concerns.
He told me that I could only ever have 8% shrinkage with Theo. He was adamant that was all I would get and I felt so unhappy. I realise he couldn't tell me that as Theo has shrunk by 10%.
I hope it is a reverse dream and he is more positive this time.
I also dreamt about my daughter at the top window of a 2 storey house with her old school uniform on and she was closing the windows as I looked on from outside.
I have been sorting out Kieran's uniform for his new schooll so that could be why Siobhan was wearing a uniform but I don't know why she is closing the window.........weird!
I went to Kiearan's school coffee morning this morning and had a foot massage....'sigh'....and then went for lunch with my friend Helen.
I took some of Kieran's toys to a charity shop as he doesn't play with them anymore and in his words "I am 11 now"!
All is so good at the moment and I want it to stay like that.
Tuesday, 1 July 2008
Any one with any other ideas or helpful hints
can contact Karry via email at
I have told her that I take co-codomal with paracetomal, Ibuprofen is something that is reccommended but I am allergic to it.
Thanks for taking the time to respond and I know Karry will appreciate any help or advice she can get.
Any information provided is advice only and should not be taken as medical advice. Always talk to your GP about any concerns.
I wore my tiara all day as I did so well and I feel so well inside that I want to wear it forever. I am proud of myself at the moment as Theo seems to be doing what I want him to do and stay in Germany!
I won another prize from a coffee morning I went to, a little candle shaped like a cake.
My third prize was Theo shrinking. Life is good at the moment, I hope it continues.
I am looking forward to seeing all my work mates as they are all a great support to me and keep me going.
Kieran is not at scholl today but will hopefully be back tomorrow as he has had a tummy bug. His dad and I have had it, I am sure my sickness was that and not the procedure or the mistletoe.
I only have today to work and will have my 3 days off on wed, Thur, Fri and will catch up a bit more with the house and friends.
Friday I will find out a little more about what Theo is doing as I have my oncology appointment.
Hopefully he is enjoying Germany and doesn't want to come back. He is welcome to stay in Theodore Stern Kia 7 for as longs he wants to.
Don't hurry back Theo!