Sunday, 30 November 2008
I took my mistletoe last night. I upped the dosage to 40mg so it is now 40mg twice a week. I am still convinced that the mistletoe has had a lot to do with my result as it has boosted my immune system and makes me feel so well.
Saturday, 29 November 2008
I met up with somewonderful people who had had a few drinks and words and compliments were flowing from their mouths about how inspirational I was.....I find that hard to believe as I am only doing what anyone would do i my position....I want to live.
It was very sweet of them to say it though. I picked up my team mate Debbie around 9:45 as she was working late and met up with my other friend, Rae.
We left at 12:30am and I took Debbie home, She was a little the worse for wear but at least she got a little home ok.
It was so cold last night, I was dreading getting out of my little car to walk back to my house.....BBBbbbrrrrrrrr!!
Friday, 28 November 2008
Theo was playing up a bit but that soon died down. I got back to sleep only to be disturbed by Storkie and his usual suckling. I called him Bitty and got a whack from his paw.....Sure he thinks he is human!
Eventually got back to sleep and then THE ALARM WENT OFF : ( !!!
When I did get up and dressed, I had breakfast and went out to the car....she wouldn't start...flat battery as it was so cold.
I called the RAC at 8:33am and was told that a mechanic would be with me by 9:05am.....I was on my way to get a cake for Kieran as he has a school fete today and he is going to school in his civilian clothes and payment is 1 cake.
The RAC man....a very, very nice man..... turned up around 8:30am.....Brilliant!!!
He jump started my car and said the battery was knackered, it was a second hand battery from a couple of weeks ago. He said he could put in a new one at a cost with a 3 year warranty. He told me about other dealership that sell cheaper batteries but I said I would have one from him as it would be more convenient.
Irt was all fitted and woring by 8:50am....wow......excellent. I went back in doors and put my face on and went off to the car and on the way realised I ADN'T TAKEN MY PILLS, HRT AND THYROID PLUS MY SUPPLEMENTS!!!
GGgggrrrrr..... Richard put Kieran on his bus and i got a cake from the shop, raced around to Kieran's school and then off to work.....phew!!
I finished work at 5:oopm today and am going to get ready for the Orange party tonight. Kieran doesn't want to go to his school fete as the Jonas brothers are on TV and Camp Rock is on as well.
At least I have time to get ready now....should be a good night. Theo will be accompanying me and will hopefully be too busy with socialising and won't bother me.
My friend, Jeanette hasn't been well and has been off work a couple of days. Get well soon jeanette and see you soon x x x.
Right, I am off to get ready........bye!
Thursday, 27 November 2008
I have been watching I'm a celebrity ...get me out of here and I ust admit Timmy Mallet hasn't dissappointed me....he is still an annoying idiot.
I am sure the public will keep him in as he annoys the others.
I enjoyed watching Johnny Lydon on a previous one a she was hilarious and I would like to see him on TV a lot more.
He and Sid Vicious were my early punk heros.
Kieran has Mufti day tomorrow and he is supposed to take in a cake....I forgot to get one so that means get going to the shop in the morning.
Hopefully it won't be likeTuesday morning!!!
Wednesday, 26 November 2008
Tuesday, 25 November 2008
I am going to wear a white catsuit with blue and white frills on the legs and arms. Wendy is going to wear a yellow tunic and shorts. We are going to look so cool!
The children and I have sorted out our differences, I think! Rich cleared up the kitchen and even sorted out the kitchen cupboard!
I am back to work tomorrow. I have to do my Mistletoe tonight, 40mg, I am going to up the dosage at the weekend as I only take 20mg at the moment but I don't get many side affects from it.
I am absolutely sure that the Mistletoe plays a large part in my tumour shrinking.
Theo has been very quiet lately, I like it that way and I hope he has got his tree up in Germany and is ready for the festive season, Go for it Theo, have a great time.
I am going out with my sister today which will be nice. Siobhan has gone to college as I had a word with her last night. She shouted from her room last night telling me to turn the TV down. I asked her to come down and tell me in a proper manner as I am the only one who works in the house and support everyone and I will have the TV as loud as I want to.
I hope we can work things out, it is like most families, they all fall out at certain points and usually make it up.
I want them to understand how hard I work to support them all and we do have a good life at the moment.
I don't feel like this all the time but it has come to a head as the housework and washing is a joke at times. I feel I am the only one who wants a tidy house. Coming home to a dirty wok, pots and pans and dishes in the sink and no meal made after a hard day makes me feel so disrespected.
I try and make a meal for them when they are busy but it isn't always reciprocated.
I am going to ice the cake tonight with Kieran and will take some to work for my friend, Barbs who loves Christmas cake. I hope it passes her inspection!!
I must remember not to have too many rum and cokes when making Christmas cake!
Monday, 24 November 2008
I was trying to talk to him about getting a job and that I want to know that my children can support themselves when it got a bit out of hand and I started to have a few tears. I told him that I didn't bring my babies into this world to leave them and how I never asked for all this.
Siobhan, I would like to think, will be self sufficient as, hopefully, she is at college and has her boyfriend who will help her and support her. Rich has no one and needs to get a job. I don't think either of them realise the seriousness of the situation and they don't talk about it and it is crushing. It is the most difficult subject I will ever approach with my children.
The only one I should be concerned with is Kieran.
I don't know what to say or how to approach it.
Yes I have had a good result from Germany and I hope it continues, but I don't think either of them realise how I really feel.
I would like a lot more support with the chores around the house as when I am working, I come home to a student hostel!
I find it really difficult being the mum and dad in this family.
Some of this is the rum talking, had a couple this evening, but maybe it needs to be said !
Sunday, 23 November 2008
Kieran and I will be making our Christmas cakes today which should be fun.
The kittens are crazy and enjoy chasing each other around the house to Kieran's delight.
He has really got into his Jonas brothers music. He has also said he likes high school musical 3 and is going to see it with is dad.
I am so pleased to see him develop his own personality and tell what he enjoys listening to.
Saturday, 22 November 2008
I will find out next week if I can go.
I have found more information about the court case from yesterday as it was reported in my local paper.
I hope that this ruling is recognised and the insurers don't win their appeal. They squeal and squirm their way out of acknowledging the liability.
All we need now is the pleural plaque illness recognised as there should be a payment available to anyone who pleural plaque, why should anyone have to wait until they get Meso.
My dad was one of the luckier ones, if I can phrase it that way, as he got a payment before it was abololished.
Friday, 21 November 2008
When I came home, I had a phne call from a lady who had been to see Professor Vogl. He is going to help her and she will be returning to Germany for her frst procedure next week. That has absolutely made my day. If feels so good to have made a difference to someone so much that they may get some extra time on this earth. I really hope it goes well for her and she gets the results I have had.
I had a DVD sent to me yesterday from Gary and Kristy and it s beautiful. It is a short film about the affects of Mesothelioma on a family and I was very impressed with it. I showed a couple of my friends and they were in tears as was I.
And just one more thing to add......
Thursday, 20 November 2008
I have loved the cure forever but have never seen them live and now it is happening!!!!
I am so excited, I have had the best christmas gift ever with the tumour shrinking and now I am doing another wonderful thing.
Thanks Siobhan.....I love you x x
Rich didn't get his job but will be going to the local hospital for an application form as he really needs to get into work.
Tuesday, 18 November 2008
Karryanne has been very helpful in finding links and information about treatments and pain relief which has helped other patients.
Now it is our turn to help her and her family. We are here for you when you are ready, just say the word.
Todays blog is dedicated to Tony Todd and his family.
My illness is a death sentence - but I'm determined that I'll see out my year as mayor; GATESHEAD'S LEADER TALKS ABOUT HER TIME AHEAD
Evening Chronicle (Newcastle, England)
Monday, 17 November 2008
I arrived in Weymouth at around 2:00pm and have had the most amazing day. My friends Chris, Beck's, Jeanette and I had lunch and a look around Weymouth and were joined later by my cousin, Richard and his wife, Linda. We had an evening meal together and caught up on old times while Chris, Beck's and Jeanette got sorted out for the evening as Jeanette needed her coat. It is a little chilly here but not as bad as Leeds!
Saturday, 15 November 2008
I will pack my bag tomorrow and will be off to Weymouth....nearly wrote Germany then.....as I will be staying there for 3 days and back to work on Friday.
I chilled out in front of the TV and watched Columbo, one of my favourite TV detectives. Siobhan and Richard watched it as well as they love him!
Kieran will be back home tomorrow as he is with his dad for the weekend. Kieran rang me and told me all about his train tour he had gone on with his dad.
I am going to make a Christmas cake with Kieran, that will be when I am off on a weekend soon. I haven't made one for years and it will be good to get back into it again.
I love Christmas and my tree is very special as it is the one I bought January 2007 to use as a target to survive until Christmas and it has now become my challenge every year.
I recorded an interview and advised of my treatment and the success of it. The radio interview went out on 13th November and it was all about Mesothelioma and people who have lost their lives to it, which is fine, it is all good publicity.
There was no mention of asbestos brought into the home from the work place and contaminating other family members or any mention of other treatments like mine that are working to shrink the tumour.
The treatment is important as there may be a lot of desperate people out there who do not want to die and should have the option to have the procedure if they want it.
May be it is because it isn't available here?
Who knows. I will be emailing the reporter with my thoughts.
Interview on BBC radio.
Chris Knighton's interview.
Ian Wright's asbestos warning. Youtube.
Friday, 14 November 2008
Thursday, 13 November 2008
I went into the city centre this evening with my friends, Helen and Carolyn, to see the Christmas lights switched on and it was an experience!
We had 5 autistic children and 4 adults, a lot of anxiety,stress, frustration and hyperactivity!
We went to McDonalds for something to eat afterwards as all the children were looking forward to that. I am not a McDonalds fan but had chips and a McFlurry kept me happy. Kieran and the other children eventually settled down but us adults all agreed we would sleep well tonight!
Wednesday, 12 November 2008
Tuesday, 11 November 2008
Monday, 10 November 2008
Sunday, 9 November 2008
We had lunch at the store and then strolled around and took our time looking at all the sparkly things on offer.
She decided to go with a lilac/purple theme while I decided on blue.
I bought a frieze for my wall which has a winter scene on it but it only covers half the wall so I am not sure of what to do now.
I haven't spent much time with my sister as we both have family commitments and I work as well which makes it quite difficult to get together at times. Today was lovely though, I do feel tired but very happy.
I am a little tired this morning but very happy. I still find this hard to take in at the moment. It has been 2 years since I was told I had Mesothelioma and I had 6 - 9 months to live and look how things have changed. I wouldn't have found this little miracle with out the wonderful people who log onto this site, especially Pat and Tony. They were wonderful and gave me so much to look into. Chemoembolization has given me a lot of my future back. January was looking really bleak and I thought this was my last year. All that has changed within a few months. I would like to see this procedure open to all Mesothelioma sufferers and done in the UK. Professor Vogl's team were talking of coming over to the UK to perform the procedure but I didn't get a chance to talk to him about it as he was off to a meeting in Berlin.
I did my mistletoe last night and am very impressed at how well I am coping with injecting myself now.
Happy Birthday to my niece, Aleshia, who is 1 today.
Happy Birthday sweetie x x
Saturday, 8 November 2008
Like Suzy, I was quite shocked when reading it.
See what you think.....
Bricks & mortar
Q My garage has a white asbestos roof, which was quite common in the 1960s. I'm thinking of replacing it and would like to avoid paying to have asbestos removed. I understand white asbestos is not as dangerous as blue asbestos, so could I deal with it myself? Would my local dump accept it?
David Snell writes: A I am sure that there are people out there who will be only too willing to charge a small fortune to remove your garage roof. They will probably look the part when they turn up, dressed in space suits with breathing equipment. But they aren't necessary.
You are perfectly entitled to remove this material and take it to a tip yourself. Not everywhere accepts it, but I'm sure your local council will tell you which depots will. White asbestos is not particularly harmful if left undisturbed and not turned into dust that can be ingested.
It was just lumped in with blue and brown, which are dangerous. It would not be a good idea to saw or drill it in a confined space. I would suggest that you wear a mask and that you wet the sheets before breaking them off your garage roof.
The modern alternative is cement fibreboard, which looks similar but is not as strong. It breaks easily and is expensive at just under £30 for a two-metre sheet. Lightweight corrugated steel at just under £11 per sheet would be better and cheaper.
David Snell is contributing editor to Homebuilding & Renovating magazine and author of Building Your Own Home, price £25 plus p&p from 0870 155 7222.
Friday, 7 November 2008
Thursday, 6 November 2008
I don't know how Jeanette did it but, she got a pic of sophistcation and I am impressed!
We will be travelling back home tomorrow and I will see my GP on Monday for a sick note as the tiredness and the nausea will kick in for a few days. What the heck.....I am 10% lighter......yippeeee!!!!!!
Wednesday, 5 November 2008
My kitten, Stork, snuggle up and kept me warm. I was so cold and tired this morning and didn't realise I had put my knickers on wrong!
I eventually changed them when we got to Frankfurt.
Jeanette and I were like a couple of school children as the Christmas decs were up n the airport and they were lovely.
Our fllight was delayed a little but that didn't spoil the moment.
We had something to eat in an Irish pub. We then went for a walk around the area. I t was a very mild, beautiful night. We are settling down now as we have to be up early in the morning.
I hope Theo has taken more baggage with him!
Tuesday, 4 November 2008
It is also my baby, Siobhan's 22nd birthday.