Saturday, 28 February 2009
Friday, 27 February 2009
Thursday, 26 February 2009
It was really lovely to see him and hear all about his New York adventure.
I am off to see the other Mr S that is Robert Smith tonight....oh didn't I say : )
I am looking forward to having a good weekend with my daughter, Siobhan, as we don't get a lot of time together. We are going to have a chill out day on Saturday and fly back home on Sunday.
Friday is Action Mesothelioma day and Jackie Lowe will be holding a small get together at 10:3oam at Saltram House..we planted a tree last year and Jackie will be planting some snowdrops in memory of those that have lost their lives to Mesothelioma.
I am at another meeting in Gateshead as I was asked to do a talk which I am very proud to do.
Chris Knighton lost her Husband, Mick, to Mesothelioma and has worked very hard to get a group together to raise funds for research and support.
The same can be said of June Hancock Fund and Hasag...all set up by family members who lost their loved ones to it. They all have meetings, Diane of Hasag is having a dove release and Kim and Mike from June Hancock will be having an open meeting in Leeds.
Hopefully we will get a good bit of publicity from these events.
I went for lunch with my friend, Julie, yesterday and went to see the venue where I will be holding my birthday party and it isn't in Plympton as I thought, it is in Ivybridge. It is a very pretty place.
Tuesday, 24 February 2009
I am off to work today....Wigless!!!
I was so busy this morning and not even thinking about my hair when I had a text from my friend, Julie, saying "thinking of you".
I was a little confused, not unusual in the morning, And tet back "why?
She then reminded me I was going to work wigless.....Oh yes...of course...how could I forget!!!Kieran is staying with his dad tonight until Sunday. I am going out to eat with Mr S on Wednesday as he has returned from New York. I am looking forward to hearing about all his adventures.
Monday, 23 February 2009
Sunday, 22 February 2009
Saturday, 21 February 2009
Friday, 20 February 2009
I was hugging Jade and telling her about the German treatment when she turned into a tiny baby and started to be sick.
She was choking and wasn't breathing but she didn't turn blue.
I then woke up and didn't get to see if she lived.
I do like to analyse things and I felt the baby was a new life or a another chance at life and the sickness was the cancer being removed from the body.
It may well mean something else.
I have got a page on facebook to try and contact her about the treatment.
I have tried quite a few avenues and nothing is working.
I will see what happens with this one.
Thursday, 19 February 2009
I am working tomorrow and then 3 days off. I am back to work on Tuesday and then off to London to see the Cure at the 02 arena.....yippee!!!! Robert Smith...here I come. This was mychristmas present from my daughter and as I have never seen the Cure live...I am so looking forward to it!!!
Next Friday I am at Gateshead to speak at the Mick Knighton fund Action Mesothelioma event. I am looking forward to that and am getting prepared for it. I am also looking forward to having some girly time with my daughter which will be great.
I have been trying something that is so out of my realms it may not happen. I have been trying to contact Jade Goody about the treatment as she could benefit from it. I have run out of options as the places I have contacted don't seem interested. It is such a shame...a young women with 2 little boys who is in the posistion I was in last year. I hope some one does find something to help her as I wouldn't wish the nightmare on my worst enemy.
Tuesday, 17 February 2009
The Mesothelioma petition is going well. It has 890 signatures now.
Steph is back to Germany and will be having her 2nd treatment on 24th February and I am so hoping she gets a good result.
As soon as I know anything, I will add it.
Action Mesothelioma Day is coming up, unfortunately, there is nothing in Plymouth this year as Jackie Lowe has been unwell.
I am sure she won't mind me telling you, she is expecting a little bundle which has given her morning sickness.
Congratulations Jackie and family from all at Meso and me!!!
Kieran is with his dad until Friday and Siobhan and I will be preparing to see the Cure at the 02 next week.... woo hoo!!!
Then it is off to Gateshead for the AMD meeting where I am talking about my experiences.
We are going to have a girly weekend as we have extended it until 1st March.
Sunday, 15 February 2009
I am writing my talk for AMD at Gateshead. I am quite looking forward to meeting all the wonderful people who work so hard t make this day a celebration and remembrance of all those with the disease. It also brings awareness in the media, highlighting the disease.
I am going to visit my friend, Helen today. I haven't seen her for about a week. The boys enjoy seeing each other. It is half term week as well..... here come the tours!!
Which will it be...train or bus???
Friday, 13 February 2009
Thursday, 12 February 2009
James has been over to finish off the decorating and I am getting sorted to put the house up for sale.
Rich is out of work again and will have to sign on now and look for a job as he needs to be supporting himself.
Kieran is on half term next week and will spend some of that with his dad.
Tomorrow Mr S is coming over for coffee after I finish work. He is off to New York. I hope he has a good time. I couldn't arrange the work/family situation to go which is a shame.
I am sure there will be other opportunity's.
Wednesday, 11 February 2009
I am back to work tomorrow and have to wait for occupational health to confirm that I can go back onto my 12 hour shift as I have been doing 10 hours throughout the treatment.
Rich has given up the job he had at my request and after deciding for himself that it was just stupid going to work and not knowing where he would end up.
He will be looking for something else very soon...I hope!
There was a piece in the paper yesterday about the fund raising done in Orange for Steph.
It was a little late but never the less it is publicity for her.
Although the article says January 28th, it was published in yesterdays paper.
The picture is great, I have ordered one for work.
I went out to see my friend, Carolyn today and she seems a lot better in herself. She is going to come to St Ives with us in May which will be wonderful.
She deserves a break after all she has been through.
Tuesday, 10 February 2009
I rang him at 9:00pm and he was waiting in the bus/train station to get home.
I have told hm to give it up as it is ridiculous to expect someone to do this. He said he wasn't told he was gong to Exeter for training. What an awful company, I think it is all about pressure selling and also a lot of brain washing to sell the product. He has been telling me about it and it is like pyramid sales which I have always avoided.
He has been quite keen to do the job, telling me about how much he could earn in 2 years.
It isn't for him and I will be having a good talk to him when he gets home.
Rich has been doing ok with his new job. I am not sure how long this one will last as it is marketing and selling.
Tomorrow I am going to See my friend, Carolyn who has been quite poorly lately.
She has been a great support to me through my ordeal and now it is my turn to support her.
She is a wonderful friend and I hope that she doesn't have to go through what I have been through, She doesn't deserve that.
i will be half a century old in July and I am pleased to be here to celebrate it with all the people who care about me.
I saw Steph yesterday and she is looking very well. She says she hasn't felt so well for a long time. Ali has noticed a difference in her as well. I took out the money raised by my colleagues in Orange which was £682 and the money raised by Charlotte for her sponsored silence which was around £100. It was good to see her and that she is looking so well. She is back to Germany in February for her 2nd treatment and she will hopefully be hearing that her tumours are under control.
I heard from Chris, another meso mate, who went out for his second treatment. He said the first had gone really well and his tumour was shrinking. He also said Prof Vogl thinks he may only need 4 treatments. That is such good news, I still feel saddened that Nicky and a lot of other lovely people won't benefit from this. All I can do is spur on with my campaign in their honour.
I went out to eat with my friend, Tina last night. We had a lovely time and popped in to see Julie afterwards as we are arranging our trip to St Ives again. We went last year just as I was starting the Mistletoe. I wasn't quite on top but this time I intend to make up for that.
I am out to lunch with Mr S today and then off to do the usual shopping for the family.
The weather seems better today, it rained so much yesterday, still no snow.
Saturday, 7 February 2009
Unfortunately, I had too much wobbly juice and felt terrible yesterday. I didn't get home until around 1:45am and came home to 3 very worried children as I said I wouldn't be late.
Yesterday was difficult, my own fault I know.
I didn't get the job I went for but I am not to fussed about that as it was a small change to what I am doing now.
I am working today and tomorrow.
Monday I am having a valuation on the house. I went to look at a house on Thursday but it needed too much work done on it and as we would be living in it, it wouldn't be good.
Wednesday, 4 February 2009
Wendi has a wonderful website called My Meso which is very informative.
I have added the transcript below.
Q: Explain the basic procedure of chemoembolization / locoregional therapy in the treatment of cancer. How does it work?
A: The basic principle of chemoembolization/locoregional therapy is to achieve a transarterial approach to the tumorous lesion. In the treatment of mesothelioma we have to find the direct supply to the cancer. Then the chemoembolization material can be selectively inserted directly to the lesion. A concentration of cytotoxic drugs of up to 20 times higher can be achieved compared to systemic chemotherapy with reduced adverse events. By cutting off the vascular supply, chemotherapy can be retained in the affected region for several weeks.
Q: How did you learn that this treatment is effective for mesothelioma?
A: During treatment of patients with primary and secondary lung cancer we learned that locoregional therapies are effective for the treatment of mesothelioma.
Q: When did this clinical trial begin? (or how long has it been going on?)
A: The clinical trial started three years ago and will be continued for the next two years.
Q: What are the goals of the clinical trial for this treatment?
A: The goals of the clinical trial are to improve local tumor control, to reduce clinical symptoms like breathing problems and pain, and to increase survival.
Q: How many people with mesothelioma are you currently treating in this clinical trial?
A: Currently we treat 300 to 400 patients with primary and secondary lung cancer per year, and we treat about 20 patients with mesotheliomas.
Q: What are the general / overall results you are seeing in the trials?
A: Clinical symptoms and clinical status of the patients have improved. Local tumor control has improved as well.
Q: What is involved in evaluating a person to see if they are a good candidate for this type of treatment? (What is a good candidate?)
A: Normally we need the following material from the patient before treatment: histology of the cancer, therapy protocols so far obtained, images showing the extension of the tumor. A patient with a localized pleuromesothelioma in one half of the chest is a good candidate.
Q: Explain the procedure for someone receiving this treatment – what happens during a typical treatment visit? How long does it take?
A: After local anesthesia, the femoral vein, which is located in the inguinal region, is punctured. Then a small femoral sheath is usually inserted in the vein through which different catheters can be inserted. After displaying the caval vein, a catheter is pushed forward into the tumor feeding vessels after trespassing the pulmonary arteries. For preventing pain analgetic drugs are administered. Then the chemoembolization as well as the embolizing material are applied. Towards the end of the procedure, the catheters and the sheath system are removed and a compression bandage is applied in order to prevent complications in the inguinal region such as hematoma. After surveillance of 6 to 24 hours, in which complications might be detected and treated, the patient will be discharged. Up to 24 hours after the procedure a CT scan is performed in order to evaluate response to treatment or complications.
Q: How often / frequently does a person receive treatment?
A: The patient normally receives the treatment three up to four times in a 1-month interval.
Q: What are typical side effects of treatment?
A: The typical side effects of the treatment are very low. Normally the patient suffers from fatigue. Nausea and an increasing shortness of breathing are also rarely observed.
Q: How would someone apply to participate in this clinical trial? (Is it still open to receive new patients?)
A: If you send me material (medical reports, MR images, CT scans) I can check it and provide a treatment plan thereafter.
If you are interested in learning more about chemoembolization, or being evaluated for possible inclusion in the clinical trial, you can contact Dr. Vogl here:
Prof. Dr. Th. J. Vogl
Department of Diagnostic and Interventional RadiologyUniversity Hospital
Contact telephone number: 0049-69-6301-7277
Tuesday, 3 February 2009
The picture above is the picture of my hair now. I have dyed it but the most impressive thing I have found is that I have been taking the mistletoe since April last year, and it has given me back the colour in my hair. With having the chemo as well it has been more impressive as my hair hasn't fallen out, it has grown back! I never do anything in a straight forward way !! : )
I am out to lunch today, weather permitting with a friend I haven't seen for 25 years.
It has been snowing here but has not settled. It is quite mild here.
Monday, 2 February 2009
I know when I have the symptoms that the mistletoe is doing something.
Today I have been absolutely fine and the flu symptoms have gone.
Today has been a good day as I have been a little low since Nicky passed away and did wonder if I was doing the right thing in recommending the treatment to other people when it has worked for me and not knowing if they will get the same response.
I had a blast from the past yesterday, a friend I had not seen for 25 years came to the house and spoke to my son, Richard. Rich gave him my number and he called last night and all being well tomorrow, will be going out to lunch.
It has been snowing all over the country but not in Devon. It has been forecast for tomorrow and Kieran may be home, I will wait and see what happens. If he is home, I predict snowball fights and building snow men....woo hoo : )
I have a job interview on Wednesday for a job in a different department in Orange. I will do my best at the interview and know I can do the job but it is whether my absence because of my treatment will go against me.
If I don't get it, I will wait until something else comes up.