Sunday, 31 January 2010

feeling much better today.

I had a great night sleep until Kieran came in with the kitten for a cuddle.
I haven't got much pain left now, still a little breathless. It was good to see Ali last night, I haven't seen her for a while. She is doing well and coping, she lost Steph in November and that must have hit her pretty bad.

Happy Birthday to my lovely friend Tina. She has been a great support to me and it was lovely to spend some time with her on Friday.

Siobhan has a lovely little family staying with us, her friend, Laura, Pete her boyfriend and thier little boy, Chris. They are with us for the week.


Saturday, 30 January 2010

Out last night.

Happy Birthday Tina x x


Myself with Carolyn and Tina.

I went out to see my friend, Tina last night. My other friend, Carolyn and I decided to cheer her up with some balloons, cake and gifts. We had a lovely evening. We watched the sex in the city DVD that we enjoyed and chatted. It was very relaxing, we will be doing it again.
I am glad I got out as I have been feeling awful and a bit sorry for myself, it did me good.
As you can see from the picture, I look terrible.

Siobhan's friend is coming to Plymouth today and staying with us for the week. I have my CT scan results on Wednesday, Siobhan and Rich are off to London next Thursday to see Rammstein, a German rock band.
It's going to be a busy week!!

Friday, 29 January 2010

Feeling really rough today....

.... and I am probably looking it as well!!! I fell asleep on the sofa this afternoon. I had plans for today but cancelled them all as I feel so rough at the moment.
The pain in my back is going but the tightness and coughing is still very vocal.
I am going to venture over to see my friend, Tina, as it is her birthday on Sunday and my other friend Carolyn had made arrangements to celebrate with her tonight. Julie can't be with us as she is otherwise engaged but we will all get together when Tina and I feel better. What a pair we are, she with her bad back and me with my coughing and spluttering.
I was supposed to be going out tomorrow but that has been cancelled as well.
My facebook pals have been brilliant, I hope all went well with the Prof's talk today.

***** Breaking news ******

The BBC Politics show, Sunday, 12pm will feature Ron from North Devon who has had funding for chemoembolisation in Germany with Professor Vogl. The PCT are now refusing to fund any more and have said they will change the rules so he won't get anymore funding. His MP, Geoffrey Cox will also be featured.





Rotten night.

I have had a terrible night, not had one of these for a long time. I didn't get to sleep much before 2:30am, I have been coughing non stop, mucky frothy yukky stuff and am still very breathless. I was going to go out to lunch today but will cancel it as I need to rest today. I am hoping I feel better by tonight as I have arranged to see my friend, Tina. It is her birthday on Sunday but she is having a small get together this evening at her house as she has a bad back and can't move very quickly.

I hope this gets better soon if not it will be another trip back to the Dr's.

Professor Vogl is talking in Dublin at 11:30am this morning. He has been invited by Dr Steele of the British Thoracic Oncologists Group to talk about Chemoembolisation.

(Prof Vogl didn't go as his mother was ill and sent a colleague instead)

This is great and I really do hope they listen to him and take on board what he has to say, God luck!

Wednesday, 27 January 2010

Chest infection is the diagnosis.


I have just returned from seeing my GP. I have a chest infection and a temperature. I have got some antibiotics to take and hope that knocks it on the head. The CT scan went well. Gina brought a cocktail stirrer up with her and we had some fun, I did try and convince myself it was a cocktail, But it most definitely was not!! Who has ever heard of an Orange and chalk cocktail......... ((((((shudder)))))))))
The Cookie monster went back to the vets about her paw, She is fine and has had antibiotics too. What a pair we are.

CT scan today

I have rang the hospital and the CT scan can still go ahead. I am quite breathless this morning and still have the back pain. I have made an appointment with my GP for this afternoon. i think it is a chest infection and am hoping it isn't another bout of pneumonia.
Gina is coming with me to the hospital.

Cookie has to go back to the vets today, she is still limping a little, her paw is sore as she growls when anyone goes near her. Now the swelling has gone down the vet may be able to see what the problem is.

Siobhan helped me out this morning, she got Kieran ready fro school. He was a little argumentative as she asked where his lunch box was, he told her he left it in school. Siobhan went on to say he needed to remember it and Kieran went off on one.
He eventually settled down after protesting about it.

Oh What A Night!!!

No it wasn't late December back in '63...... It is early morning in 2010 and it is 2:56am, I have had an episode of the rigors. This happens when there is an infection somewhere in the body.
My temperature has gone up and to bring it back down I get a case of the shivers. This is called the rigors. The pain in my back on the right side is probably due to a chest infection, I am thinking pneumonia again...... Gggrrrr!!!!

Poor Rich was worried, asked if he should call an ambulance, I told him I will be fine once I warm up. I have 2 duvets on the bed, a fleecy blanket, a heated blanket and my dressing gown. I had to venture to the bath room which I didn't want to do because as soon as I hit the normal temperature, I shiver, my teeth chatter and my skin hurts. Once I go into bed and settled down, I warmed up and started to feel less cold.
I will have to ring the hospital in the morning and ask if I should continue with the CT scan, I think I know what they will say but I want the results of the radio therapy. I was hoping to go back to work next week but that may not happen either.
Poor Rich, I called to him to get me some tablets for the pain in my back, and the lap top of course as I need to record all events for future reference and if there are any other meso sufferers who get the rigors too, they will know what is happening.

By the way Mr Rigor the Tigger, I am not letting you win!!!!

For more information about rigors, copy and paste the link below.

http://en.wikipedia.org/wiki/Chills


http://www.patient.co.uk/doctor/Rigors.htm

Tuesday, 26 January 2010

Here come the water works!!

I am feeling really miserable about the scan tomorrow. I have pains in my back, think it is due chest infection I had recently, not sure if I have picked up another bug but my mind points to Theo. I am so frightened that he has grown back. I feel some days that I want to walk away from it all. I hate this feeling, I have been feeling very low anyway these past few days. I hope that next week I get good news, yes I am being greedy, I want good news. I want this treatment to give me good news so others can see how wonderful it is. I must admit I do miss the Prof, he is always so positive, poor man has to listen to me yap on about all sorts.
I am so hoping that the radio therapy has sorted out the lymph node, if not, it will be a trip to Germany and I am going to ask for PCT funding as my funds have nearly run out because I haven't been working, we are getting by ok but I have had to rely on my savings to bump up our losses as work is just SSP and I haven't sorted out the family tax credits yet.



Cold day again....where is the sunshine??


A cup of coffee before the Prodigy gig, Tina and I know how to live the hard life.... and I really do need to sort my hair out, I had a blip over the Christmas/snow period. A pair of scissors and an unoccupied pair of hands led to my fringe being cut really badly, my hair dresser will freak.

It was really cold last night, I had gone to see the Prodigy with my friend Tina. We didn't go in the Moshe pit as Tina had hurt her back. It would have been far too violent anyway so we stayed at the back. This meant that we didn't see the band but we certainly heard them. They played Fire starter which was brilliant and a couple of other tunes which I won't put on the webpage as it may offend.
The weather is very cold again, it feels like it may snow again, I hope it doesn't as I don't want to be stuck in again, It makes me feel miserable. I want some sunshine!!

I have had a pain in my back for a couple of days now, I have a CT scan tomorrow and don't think it is the meso as the pain is in the right side and not the left where Theo is.
It has made me more breathless than normal but I can cope with it.

Kieran has gone back to school today, he is much better. Hopefully he will be at school all week. Cookie is still limping on her foot, she is going back to the vets tomorrow as the swelling on her paw may have gone down and the vet can see what the problem is, neither of us think she has a fracture as she can put her weight on it.

It was good to hear that the government had agreed to fund an asbestos research centre. They have also decided not to overturn the pleural plaque ruling which is a shame.


Monday, 25 January 2010

No school again!

Kieran is off school, again!!! This time he says he was sick 3 times before he went to bed. I am giving him the benefit of the doubt, he will be going back tomorrow. I was going to go out with my friend this morning, haven't seen her for a while, that is now a no.

I am going to upload some videos onto the blog, they are my blogs from 2008, when I went to Germany.
I am also going to add the one with Prof Vogl on, it was recorded in June 2009, the last time I saw him.

There is a lot of anger around the fact that a PCT in North Devon has changed the rulings on payments for the Profs treatment. I think it is a disgrace that they are refusing treatment when they are offering £18,000 for a treatment in the UK that won't work.
We have decided to try and get this in the media, will they listen? Locally they have been very good but nationally, its terrible. They don't want anything to do with this disease.

Cookie the kitten came in limping this morning so its a trip to the vets for her.

She is fine, looks like she has had a fight with another cat, I have to take her back to the vets on Wednesday, sure she will be fine.

Friday, 22 January 2010

Great night at the Theatre...



Kieran and I had a great time at the theatre last night. We had pizza with Siobhan and Rich and then went on to the theatre while they went home as they didn't want to come to the theatre.
We picked up our 3D glasses and settled into our seats to watch the panto, Aladdin with Christopher Biggins as widow twanky.
Kieran loved it especially when we shouted out to all who proceeded towards the Widows pork balls, "Don't touch the pork balls, leave the pork balls alone"!!
The 3D effects were brilliant. The audience screamed as bats, spiders and rocks cam flying out from the stage towards them. How many people like me ducked or closed their eyes to avoid the impact or the grisly face of the spider...Classic!!!

He is off to school today, seems the sickness may have been a little ploy to stay home as his dads girlfriend is coming down and Kieran likes spending time with her and her boys, and his dad of course.
He is staying there over the weekend. I hope he has a lovely time. I am not sure what I am doing the weekend, I may visit some friends, i am off to see the Prodigy on Monday, now that could be an interesting evening!!!




Thursday, 21 January 2010

Panotmime tonight,....oh no it isn"t......


....Oh yes it is.... Kieran and I are off to see Aladdin in the theatre royal tonight. We are going to have pizza first. we are looking forward to it as we haven't done a lot since I was ill last August, it has taken me a while to get back on top but I seem to be on the up. Siobhan and Rich declined the offer of the panto tonight, such a shame, I think they are going to miss a good night.

Kieran went back to school today after having 2 days off. He said he felt sick this morning, he was fine yesterday and the day before so I think maybe the drink of lemonade with breakfast wasn't a good idea!!!

There is a publicity drive being organised by Dawn as her friend, Ron, has been refused any help with treatment in Germany by his Primary Care Trust (PCT).
This seems very unfair considering that they have paid for part of the treatment and in their statement.
Any ideas, please email me at Phu_phita@hotmail.com .

Wednesday, 20 January 2010

Positive vibes!!

I have been reading an article by Stephen J Gould. While looking for famous people with Mesothelioma, I came across him.

"Stephen Jay Gould was an influential evolutionary biologist who taught at Harvard University. He was the author of at least ten popular books on evolution, and science, including, among others, The Flamingo's Smile, The Mismeasure of Man, Wonderful Life, and Full House".

He had peritoneal mesothelioma and had been given 8 months to live from diagnosis. He went on another 20 years but it wasn't mesothelioma that had taken him but another cancer. He wrote an article called "The Median Isn't the Message".

A quote from the article that I think is absolutely wonderful,

"Attitude clearly matters in fighting cancer. We don't know why (from my old-style materialistic perspective, I suspect that mental states feed back upon the immune system). But match people with the same cancer for age, class, health, socioeconomic status, and, in general, those with positive attitudes, with a strong will and purpose for living, with commitment to struggle, with an active response to aiding their own treatment and not just a passive acceptance of anything doctors say, tend to live longer"

More and more people are doing better than the Dr's say they should which is wonderful.

We are having a massive publicity drive as we need to get the message across about the Profs work and how people are surviving. Any one who can help will be most appreciated. I have tried This Morning, I am going to try and get the interview on youtube as it was done in 2007, and have been told I have to wait at least a month to get a reply to my email.
I also did an interview for full house magazine in 2007 which I wasn't happy about, it is in the publications part of the blog site. I am tempted to call them again as this was how this morning got my story.
I am not too keen on GMTV, they were terrible, didn't research properly and even asked me if i was worried about my children catching it???

Who knew that nearly 3 years later, I would still be here, I am so pleased to be able to rant, shout and scream for all meso sufferers and the unfairness of this forgotten cancer.

I will update if I hear anything.








Tuesday, 19 January 2010

CT scan blues!!

I have been feeling quite low over the past couple of days, I haven't seen much of my friends, Kieran is home again today, he was feeling unwell when he came home last night. He went to bed when he got back from school and fell asleep, he never does that. Just to be sure, I have kept him home. He seems ok today though and I am sure he will be well enough for school.
Rich is back to being home all day, he doesn't have a job and doesn't look like he has any insentive to find one.
Siobhan is out with her boyfriend, she graduates this year which I am really looking forward to.

I have felt quite tearful and tired over the last few days. I had a strange feeling a couple of days ago. I felt I wasn't going to be here for Christmas 2010. I am sure it is just how I am feeling, maybe a little depressed, a lot of people are this time of year.
I have my CT scan on 27th January and I know I always get very donw just before it. I worry about Theo growing again, every twinge I feel makes me think he is on the move again.
I am so hoping that the lymph node has reduced. Professor Vogl said he can do something but I don't have the money to do it. I have started to use my savings since I have been off sick.
I will wait and see what happens with the results on the 3rd of February before I start worrying about what comes next.

Sunday, 17 January 2010

What a lovely day!!

Today has been really lovely, the sun has been shining, I got off my backside and sorted out the conservatory. I have put the 2 chairs in there and it is now hopefully a nice place to chill out.
This will be the first week since we had snow that Kieran will be at school.

Good luck to Lorraine who's dad is going to see the Prof for the first time. I think that most of the people who have seen the Prof will agree that the first time you go is the most nerve racking time. It isn't just meeting the Prof and hoping he can help but the flights and hotel.

Good luck also to Karen's dad who is seeign the Prof tomorrow.


A third good luck to Kevin who will be having conventional chemo in the UK. Hope all goes well for both of all.

The Profs page on facebook now has 259 people who have joined. It has also turned into an information and support page. We are hoping a lot more people turn up and that the powers that be can see the positive side of Mesothelioma. I had a great surprise on facebook this morning, a message from Dr Maurice Orange, he has joined facebook!! He is the Dr who works at Park Attwood with the mistletoe therapy.


Saturday, 16 January 2010

Mistletoe aches today!!!

Kieran stayed with his dad last night , I raised a glass to all the wonderful people who are fighting to get Prof Vogl's treatment recognised in the UK.
I took my mistletoe on Thursday and I have found that 48 hours later it can make me feel achy.
It is a mild ache nothing major and it does let me know that it is in my system.
Next week will be back to what it should be with no disruptions caused by snow. I knew if I got some stock in that the snow would stop and it did. I often wonder how some people would cope with a real emergency as the crazy shoppers bought up everything they could of the basic needs.
I do feel very grateful that i have a good life, wonderful children and some of the most amazing friends in the world. If we had an earth quake like the poor people in Hiati, how would we cope in the UK?
The Prof's page has over 200 people on it now, not bad seeing as it has been up for less than a week.
He has so many people all over the world who are living thanks to him, he is so positive and willing to help. I really do think a lot of oncologists can take a leaf out of his book and be more positive. Patients aren't stupid, when cancer is diagnosed we all know there is a chance that we won't make it but there is also the chance we will.


Thursday, 14 January 2010

Kieran back to school today.


The sun is shining and Kieran has gone off to school. He has been watching the weather and is keen to get back and see his friends. I have so much to catch up in, the council hasn't emptied any bins for 2 weeks. Our rubbish is building up so I might see if I can take most of it to the recycling centre.
Our facebook page has 200 people who have joined it now. We are hoping to get 500 by the end of February, it is going well.

There is still a lot of negativity from oncologists concerning mesothelioma. I don't know if they realise just how miserable they make people feel when they give their point of view.
I personally think that oncologists should think about what they can do for patients and not what they can't.
There are a large number of people who are now being treated by Prof Vogl and who are surviving. I hope his meeting goes very well this month and that oncologists listen to what he has to say.

Just a quick note:
Good luck to my niece, Rochelle, who is in hospital about to have an operation. Thinking of you honey and hope all goes well... call if you need anything x x x

Wednesday, 13 January 2010

Disgraceful!!!

This article has just been published in my local paper.
The comments option has been removed from this article.


PEOPLE in Plymouth were exposed to potentially deadly asbestos fibres when a major city centre store was being refurbished three years ago, a court has been told.

Marks and Spencer denies six charges brought against it by the Health and Safety Executive relating to the major refurbishment of its stores in Plymouth, Bournemouth and Reading in 2006 and 2007.

The contractor responsible for controlling asbestos during the Plymouth refurbishment this week admitted the offences.

But M&S denies breaches of health and safety rules.

The Health and Safety Executive prosecutor Michael Veal outlined his case against M&S at a hearing at Bournmeouth Magistrates Court this week.

Michael Forster, counsel for Marks and Spencer, indicated that the chain would be denying six breaches relating to work carried out as part of a major national refurbishment and expansion programme.

Guilty pleas were entered on behalf of Clarence Contractors of Sheffield, which was charged with four offences relating to control of asbestos at the Bournemouth and Plymouth stores.

District judge Roger House imposed a fine of £50 for each offence, with £100 costs, after hearing that the company had gone into voluntary liquidation in 2008 and only had £318.

The hearing was adjourned until February 12, when the case is to be committed to Bournemouth Crown Court.

Willmott Dixon Construction of Letchworth in Hertfordshire, the principal contractor for the remodelling of the Bournemouth store, faces two charges of contravening health and safety regulations in 2007.

The principal contractor at Reading, Styles and Wood of Altrincham in Cheshire, admitted two breaches of health and safety regulations and will be sentenced at Bournemouth Crown Court.

Not guilty pleas on two alleged offences relating to the control of asbestos at the Reading store were formally entered on behalf of contractor P A Realisations of Manchester, which was not represented in court. The company went into administration in 2008.

Asbestos used to be commonly used in buildings, but the fibres are dangerous if they are breathed in.

Past exposure is now responsible for around 4,000 people a year dying from asbestos-related cancers




It's official, I don't think we will be snowed in again this year!!!

The weather is going to change, I have just had a home delivery of goods from Sainsbury's. I am now well stocked up if we get snowed in again and that usually means that we won't!!!
It's like buying an umbrella after weeks of rain and the sunshines. I am glad the snow is over, well I hope it is. The sun is shining this morning.
We have a new addition to the family, a cat Siobhan has named Bunker. He is a huge black cat, very friendly, he has taken to sleeping in our conservatory, he doesn't go anywhere else in the house. I haven't had the heart to throw him out in the cold. He sleeps in our place, has breakfast and goes out, He comes back later in the evening and stays all night again. The kittens are tolerating him and all seem to respect each other so that is good.

No school again!

Kieran is home again, the weather yesterday was a mixture of snow and rain. This was creating slush on the roads and could be a hazard. Kieran's transport was cancelled, School was open but if transport thinks the road is bad, I am not going to take that risk.

I bought 2 conservatory chairs from Argos , it has only been fixed up for one day, Rich sat in it and the seat fell through. I have called them and they will be picking it up and bringing a replacement on Friday. I have to make sure everything is packed up properly and securely in the box it came in. Because I have 2 and have only opened one, I am going to replace the damaged piece with the piece in the packed box.
I have told them that if it happens again, I want my money back.

The Professor's page on facebook is going well, we have nearly 200 people on it now, not bad considering it has only been up for 3-4 days.


Tuesday, 12 January 2010

Don't forget the Profs page.

I have set up a page on facebook in appreciation for all that Prof Vogl does for mesothelioma and cancer patients.
He is a very dedicated person and I want him to know just how much I and many others are behind him as he tries to find something that will have an impact on mesothelioma.


http://www.facebook.com/group.php?gid=263532046239&ref=mf

Copy and paste this link to go to the facebook page. You made need to sign up if you haven't already. Facebook is easy, you invite only those people you want on your page. It has been a fantastic way of spreading the message about the Prof and the treatment.





Kieran back to school.

The weather is dry this morning but very windy. Snow has been forecast for this afternoon and I am hoping that Kieran doesn't get trapped at school. He was very nervous about that this morning.
I went shopping after Kieran left for school. This was the first run in my little car since Monday last week. She has been in the garage and it was good to get behind the wheel again.
I also got my sicknote to work at last. My boss has been very understanding and agreed that is wasn't worth taking the sicknote last week due to the weather.


Monday, 11 January 2010

No more loafing around.. : )


I had a visit from my friend Tina this morning. She was on her way to get her hair done and popped in with some bread mixes. We haven't had a loaf of bread for a week.
I bought a bread maker at the shop on Saturday and had a test run. It came out really well and was so easy. I put everything in the bread maker and swiched it on, that was it, the machine did the rest.
Kieran didn't have school today, the buses are now running in our area and I am sure he will be back tomorrow. this will be the first day back after Christmas. A heavy snowfall is expected tomorrow so I hope he doesn't get stuck at school.

What a week!!

Last week a lot of people were house bound because of the snow. No schools, no transport even I have been afraid to get in my car and go to the shops.
My friend Tina took me shopping on Saturday, tha shelves were empty of bread, yeast, bread mix, Plymouth has gone mad!
Kieran came home early as snow was forecast but didn't happen. He is off school again today. Not sure about tomorrow but he is enjoying his extended Christmas break.

Facebook been a great way to get the message out about Prof Vogl and the work he is doing.
I have met so many people from all over the world and spread the word, this has given hope, even help as they have been to see Prof Vogl.

I set up a page in his honour as a lot of pages set up at the moment seem to get more into the public eye because so many people join them. In 2 days 114 people have joined.

Copy and paste the link below into the address bar. If you are not on facebook you may need to sign up. It is free and you only invite who you want to to your page.


http://www.facebook.com/group.php?gid=263532046239&ref=mf

Also I have seen 2 pages pop up concerning me. One is to be recognised on the honours list and the other is to have a glass raised in my honour on 15th January.
I am so shocked as I didn't expect this. There are so many paople out there doing the same as me, I am doing it to survive and sharing my story. We all have our montains to climb, some are bigger than others and we help each other, well that is unless there is bread on the shelf... hehehe.
Being serious though, thank you to all those who have set up the pages, it is very sweet of you.
There are many people in the world who do far more than me. As long as Mesothelioma, the forgotten cancer, gets recognised then it has to be good.

I have just this minute logged back into facebook and I see that Kieran has done a page too.
I am sat here with tears in my eyes, I am so proud of him.

He has said :

You All Know My Mum Debbie Brewer Well She Has Had Mesothelioma And Given 6-9 Months To Live But She Has Held On All This Tme And Given Thousands Great Advice And Help She Is A Cancer Hero Well Done Mum xxxxxxxxxx


Thank you little Bean. That is so touching x










Friday, 8 January 2010

No school again!



Kieran went to stay with his dad last night, he doesn't have any school today. The school transport bus has been cancelled and as there are only 3 children who are brought to his school by parents, the school has been closed.
Siobhan has no college, her bus has been cancelled and she has decided to stay home, she was waiting at the bust stop for 40 minutes and is frozen.
Bad weather is due over the weekend. I am going to try and get out to the shops either today or tomorrow.
All the online shopping services are full until Monday and the weather is due to be snowy again so if I did order it, it may not get here. We had pizza delivered yesterday and we are making do with what is in the house at the moment.

Wednesday, 6 January 2010

More pics of the snow.




No school again for Kieran.


I woke up this morning to find that my street had turned into a christmas card. it is snowing quite heavily now. I have to take my sick note to work but won't be doing it today. Kieran's school is closed so he is home again. I think we may make a snowman today and enjoy the white blanket of dust while it is here. I am not venturing out anywhere. Siobhan has college but not sure if that is closed.
Hopefully it won't be icy tomorrow, if it is it will be another day inside. I am so glad I don't have to go to work at the moment. I do feel for all those that have to. It always intrigues me that when we went to Lapland everything carries on as normal but the UK cannot cope with this weather, it is never prepared.

Tuesday, 5 January 2010

Its snowed today!!!


Kieran didn't go to school today. His bus slipped on the snow and I was worried about driving him to school and him being stranded so he stayed home again.
The kittens experienced it for the first time. they made paw prints in the snow which was so cute.

Margaret has been on the Prof Vogl case.
He is speaking at the British Thoracic oncology groups meeting which is being held in Belfast.
It is a closed meeting so no one can go and listen to him speak.
Good to see he is about to be listened to.
It is taking place on 29th January and will be great to hear what impact he has on the meeting.




Monday, 4 January 2010

Back to the mistletoe.

I have been without my mistletoe for a week. Because of Christmas and new year it has taken longer to get it.
I will be continuing my 40mg tonight, twice a week.
Kieran is probably back to school tomorrow, the boiler had broken down and it was felt it would be too cold for the children to be there ok. Rich took him in town for the first time. I was a little nervous about it but as he is 13 years old now, (he keeps reminding me!) I felt that him with his 20 year old brother would be ok. Kieran had birthday money and went in to get yet more games for his wii!!
I lit my candle for the meso warriors, 2 of whom have had good results from Germany today.
Well done Prof, your doing a great job.

Facebook has become one of the greatest communications for mesothelioma patients and treatments. I am meeting so many wonderful people through it and there are blogs are being created by some patients with gives others so much hope. I will be adding all the blogs and am also thinking of asking Siobhan to make a warriors wall as I feel the survivors need to be recognised as much as the heroes who have left us.

Light a candle for Mesothelioma warriors

Kieran has no school today, there is no heating. He is very pleased about that and has ran upstairs cheering!

Linda Reinstein of Abestos disease awareness group has worked tirelessly after losing her husband, Alan, to mesothelioma.
She not only has a board for people who have fallen due to mesothelioma, she has one for survivors. She has asked that candles are lit today to remember those who are fighting the disease, its a more positive way of looking at mesothelioma. It is a terrible disease that rips families apart and takes lives far to soon.
It is good to remember all those still fighting.
I have made many friends through mesothelioma and some wonderful fighters, Heather who has a lungleavin' ceremony every year. It is on 2nd February and it will feature on this site this year.
Others are Ellen, Veronica, Debbie S, Graham, Jan, Sam, Bob, Gary, Ron, Jenna, Peter and many more.

I hope you will join me in lighting a candle to remember all those fighting.

Friday, 1 January 2010

Last night of 2009.






I celebrated the new year with my children, we had a 1980's themed event, Kieran was boy George, Rich was some 80's guy and I was a throw back in a terrible dress. We had a good night, Kieran was in charge of everything!!!
Siobhan donned her leg warmers and a good night was had by all. It was so cold last night, we all put on our coats and went outside to listen to the noise of the new year.
It was very quiet in our street but we had a great view of fireworks going of in the distance.
I hope 2010 is the year that Mesothelioma gets its marching orders. Professor Vogl has worked so hard on this trial and deserves to have it escalated to the countries and patients who need it.
Chemoembolisation is the cancer treatment of the future.


Remembering special people of 2009.


It is 1st January 2010, the start of a brand new chapter.

Of course, we can't celebrate 2010 without the heart ache those who will stay in 2009. It is a mixed time of year for many as Christmas hurts so much as loved ones are not with their families. The closer to December someone is lost makes it even harder.

Please raise your glasses and celebrate the following hero's and heroin's of 2009.

January - Nicky (Mesothelioma)
February - Maureen Chapman, Mayor of Gateshead. (Mesothelioma)
March - Ken sunderland (Mesothelioma)
May - Maria Douglas (Breast cancer)
May - John (Becky Luke's Dad) (Mesothelioma)
June - John Coles (Mesothelioma)
June - Marcia (Mesothelioma)
July - Ian Woods (Mesothelioma)
August - Les (Mesothelioma)
August - Keith (Mesothelioma)
September - Jean (Breast cancer)
October - Dawn Hughes (Breast cancer)
November - Stephanie Chouette (Breast cancer)
December - Chris Shells (Mesothelioma)

The people who have passed due to breast cancer have been added as they meant something to me. Each one gave me the fight to carry on and will continue to do so. Every person above will sit on the shoulders of newly diagnosed patients as they have created footprints for others to follow and make a heavier step towards finding a cure for cancer.