It has been a struggle since February to get my chest infection sorted out. I feel so let down by Dr's and medical staff who saw no urgency at all in treating my chest infection. I am now at a point where I hope I can recover.
At the moment everything is a challenge, going upstairs, walking around the house, trying to do a little bit of house work. Not only is it frustrating, it is frightening. Breathing determines wether I live or die, it is one of the most important things we do as human beings.
In February I was having reactions to antibiotics, I have since found out I am allergic to penicillin. The only way I got any antibiotics was to be so ill that I had to be taken into hospital. No one would prescribe them.
I now have some that are, hopefully, going to do the job.
I am thinking of our little wonder woman in america as well, Janelle is having such a rotten time at the moment. Our mesothelioma community is wishing her well and hoping she will be home soon and she gets better very quickly. I don't think anyone appreciates how scary this all is until it happens to them.
Get well soon Janelle honey, we all want you home and healthy as soon as possible x x
I went out last night, just to my friend Jayne's house for something to eat. I met Chrissy and Cheryl there too who looked after me well. I managed jacket potato, I took things slow as I don't want to be back in hospital again with aspiration pneumonia.
I managed to get down all the steps at her house, Siobhan was very worried about me. I hope I assured her I would be alright. Going up the steps was a different matter. I did one flight at a time and did them very slowly, there are 3 flights at Jayne's.
Jayne did offer to carry me up the steps but I think doing it myself was more of a challenge and it will keep me moving.
I am supposed to be checking out the college that Kieran wants to go to today, that is not going to happen, I won't be able to walk very far so will have to cancel it.
I will have a day at home, home made soup for lunch I think made by Siobhan, can't get much better than that. I am drinking lots of Complan too.
I had some lovely things in the post yesterday, I am so proud of our Mesothelioma community on Facebook, we all look out for each other.
Thank you Mary for this lovely little note book. It is beautiful x x
Thank you also to my friend, Rachel, for this lovely card.
...And thank you so much as well to Shelby who sent this lovely pendant. People are so very kind and generous, Shelby lost her husband to mesothelioma, she makes lovely pictures and asks others to pray for those who are going through a difficult time. She has turned a very miserable negative into a wonderful positive. Thank you Shelby for all you do for others. It is appreciated I can assure you x x x